1st Trimester

Telangiectasias

Both of my younger sisters have always had little red dots on their faces around their mouths, and all over their body. When one of my sisters was pregnant it got worse, so much so that her OB sent her to go see a dermatologist. After an extensive family history was taken and he evaluated her, he told her she had Hereditary hemorrhagic telangiectasia. He said to be careful because it can cause internal bleeding, and he left it at that. When I was pregnant with my first, I also developed Telangiectasia all over my face, chest and hands. My OB had never seen anything like it. My sister does not remember the doctor that she saw that gave her that diagnosis, but I have been wondering more and more about it and I would like to see someone to give us some answers. Anyone ever been diagnosed with Hereditary hemorrhagic teleangiectasis ( also know as Osler-Weber-Rendu syndrome )? What type of specialist diagnosed you??
BFP #1 03/2010 EDD 11/18/2010 DD born 11/03/2010 BFP #2 12/02/2011 CP on 12/05/2011 BFP #3 12/28/2011 EDD 09/10/2012 Missed mc @ 9w3d on 02/09/2012 D&C 03/06/2012 BFP #4 04/24/2012 EDD 01/02/2013 CP on 04/29/2012

Re: Telangiectasias

  • Hi, I have no advise and I've never heard of that.  I just wanted to wish you luck.  It's really hard to have something going on that you're not getting any answers about.  I hope you get some answers soon! Keep us updated!

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