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Disappointing developmental pedi appt

nomadicanomadica member
in Special Needs
Well, it was only disappointing because I have unrealistic expectations. In my heart, I wanted to go for the follow-up and tell her how amazing DS is doing in terms of his language and social developmental, and the absence of concerning behaviors were still so pleased to see- and then she would say "Great! Clearly, there is no way he has autism!". Obviously, that didn't happen. But I do wish she had been a little more positive. For example, when I told her DS knows all his shapes, numbers, and most letters, she started talking about rote memory and hyperfocus in ASD and so on..... good to be aware of, of course, but I was more thinking that DS is just learning at a developmentally appropriate level. Anyway, I left there with a heavy heart, even though I know it's silly. I guess in my soul I haven't totally accepted the diagnosis.
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Re: Disappointing developmental pedi appt

  • houndbabyhoundbaby member
    I think we all go to those appointments knowing what they are going to tell us but secretly hope they will tell us otherwise.
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  • torrey111torrey111

    I'm sorry.

    Someone on this board often says that this is a marathon, not a sprint, so try to take it all in calmly and slowly.  I know it's really hard and heartbreaking at times though. 

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  • thefuturemrskudlathefuturemrskudla member

    I am sorry you are disappointed. May I ask, has your son been diagnosed w/ASD? How, since he is not even 2 years old?

     

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  • nomadicanomadica member
    Thanks, everyone. It's nice to be around others who get it:)
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  • nomadicanomadica member
    imagethefuturemrskudla:

    I am sorry you are disappointed. May I ask, has your son been diagnosed w/ASD? How, since he is not even 2 years old?

     

    He was diagnosed with PDD-NOS at age 14 months by the same developmental pedi. She would have given him a provisional dx at that time if that still ensured he got appropriate services- but since it does not and he did meet criteria, she gave him the diagnosis.

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  • MirandaHobbesMirandaHobbes member
    That's too bad. It's nice when they (doctors, teachers) make sure to throw in some positives now and again. If it makes you feel better, my almost 4 year old does not know many numbers or letters and his teachers are very excited about his "academics"- they say he's on par for kids his age. So your child does sound like he's ahead of the academic curve!
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  • lindzedlindzed
    I feel the same way every time I go.  I decided to get a new doctor that hopefully is a little better of a fit for us.
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  • AnloAnlo

    That stinks. I dread those appointments for this reason. It seems like I read something on here recently about keeping a journal documenting all the great things that your child has learned to do over the year.  When something like this appointment comes up and you're reminded how far there still is to go, you can still look back and try to focus on how far they've already come.

    I'm glad to read the other responses because we're gearing up for a school case conference and a private follow-up evaluation in a couple of months. It's so comforting that others get it.

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