CLCP journy begins

Kristine Schilling · January 2012

Our new little girl has a severe cleft lip and palate, at least we knew it was there from the ultra sounds. We just thought it was smaller.

We met with CHOC this week, and have started the whole long process. She will likely have her lip surgery at around 3-4 months. and some of the palate surgery between 10m and 18m. But they said they wont repair the top gum line until she is 8 or 9 years old. And she may need other procedures they havent accounted for yet. They monitor these kids until they turn 21.

Bright side. her bloodwork came back normal so the CLCP is the only concern. She has no other chromosomal abnormalities that they can find.

rsd12 · January 2012

Congrats on your newest additon! My oldest was born with a wide unilateral cleft lip/palate. The first year was definitely the toughest, it gets better. Other than the cleft he is just a typical 5 yr old. Let me know if you have any questions, we have a few surgeries under our belt already.