Special Needs

realisticdreams

You are more than welcome! They make these things call BeeKool patches. They are little squishy patches that get cool when you put it on your forehead.  They are a staple in our home during the fever spikes as IBU and Tylenol doesn't work 100% of the time!

We actually started to see a infectious disease doctor! Our rheumatologist referred us to him. Our pediatrician is also VERY active in our care plan.

 

Baby Birthday Ticker TickerLilypie Angel and Memorial tickers

Re: realisticdreams

  • imagelilbugs momma:

    You are more than welcome! They make these things call BeeKool patches. They are little squishy patches that get cool when you put it on your forehead.  They are a staple in our home during the fever spikes as IBU and Tylenol doesn't work 100% of the time!

    We actually started to see a infectious disease doctor! Our rheumatologist referred us to him. Our pediatrician is also VERY active in our care plan.

     

    i'll have to look for those we were doing tylenol suppositories bc she throws up the liquid and that was only getting it down to 102.5 or so.  We see immunology right now.   

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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