Today's FB Update:
Peaceful morning so far (not counting the weather). Doctors are tweaking his meds and trying to wean him off the epi. Taking baby steps. Starting the work up for a transplant and making sure he is a viable candidate. The testing takes a week or so. Need our strong man to gain strength and remain stable. Please continue to keep Evan in your thoughts and or prayers. We draw strength from our family, friends and others that are continuously pulling for Evan. We appreciate the support and are deeply grateful to everyone. ?
I am SO THRILLED to see they are trying to put him on the transplant list.. means the dr's are hopeful for his future, right?! YAY!
Re: Evan is doing great (all things considered) :)
The Blog
They had been talking about putting him on the transplant list if a number of things they were trying didn't work.. but I wasn't sure if Friday's cardiac arrest episode was going to change everything.
The O'Baby Blog
I think it's hopeful that they're still talking about getting him on the list!! And from everything I read, I think things are going as well as can be expected
Being on the list can be hard on a family. Because you feel like you're hoping and praying that someone else dies
In this case, someone elses child. If anyone in your family starts expressing that concern, redirect them to the mindset of " We pray that God give families strength during their time of need. We pray the transplant coordinators are able to help them see how their loss could benefit another family. God willing the heart will be a match for Evan so that we might have many more happy years with him" The coordinators are usually really good at helping recipient families navigate those emotions but just so you feel prepared.
My stepmother was a transplant recipient in 1994. Waiting for the pager to go off was brutal. We had 2 false alarms
6-yr-old Elena and 4-yr-old Julia.
My Blog! All about my girls and quilting
TTC #1 since February 2011
BFP #1 1/14/12 EDD 9/24/12 m/c at 8w4d on 2/20/12
March 2012- Dx with PCOS, started metformin
July 2012- SA completely normal