Ayva had a follow up EEG yesterday and it is still not good. SO after trying all sorts of meds ( the previous one making her not want to eat- and lost some weight- and making her not want to sleep) we are going to put her on a medicine that is not approved in the U.S. It's kind of expensive and we have to pay for it OOP. I don't know where we will get all that money- since I don't work- but we have to find a way for her to stop seizing!!!
POOP! It really sucks too b/c the US is the ONLY country that this medicine is not approved in. We will be getting it FedEx'd from Canada.
Hopefully it works and is worth the extra money (maybe I will get a job on the weekends or something!)
CROSS YOUR FINGERS!!