DOR, low AMH and POF (slight vent and question)

violetmarie61516 · December 2011

I've been feeling like I have a huge cloud hanging over my head since we started TTC. Drs have always told me I would go into menopause early and now I feel like that's the only thing I can think about. Each cycle I'm torn because I am disappointed that AF has arrived but I'm excited because I feel like ok I'm not in menopause yet, i still might have a chance.

Does anyone else ever feel like this or have a similar situation? How do you deal with it and have the drs given you any insight as to how long you have left? Or ANYTHING????

I'm going nuts over here, I'm so anxious lately. I haven't been sleeping and it's all I can think about. My f/u is Monday after all the testing and such but until then, does anyone have any words of advice???

katib77 · December 2011

Because of all that you are dealing with I would move ahead to an IUI right away with an RE. I'm sorry I can't give you much insight on your Dx, but we have a few women dealing with DOR and for them - treatment with doing an IUI seems to be the step they take. Since I don't recognize you, I don't know if you have not lurked here on our board much - but please - stick around! You will find a lot of support & advice. But since it's quitting time at work for our east coast girls...you might get more responce later tonight. Good luck with your follow up!

STL34 · December 2011

I'm sorry you are going through this. I know DOR is a scary Dx. That was my Dx when I started seeing an RE. If you aren't already seeing an RE, you definitely should.

Have you had an AFC (antral follicle count) performed? On day 3 of your cycle they count how many tiny follicles there are. This count is an indication of how you might respond to stims during that cycle.

No one will be able to give you a precise answer with respect to how long you have before menopause. They can only say that your reserve will decline in the near future or will continue to decline, etc.

I learned about my diminished reserve when I was almost 32. After discussing out options (I am completely OOP for fertility treatments) and the low likelihood of success with each, it was determined that IVF would be our best option. We had two full fresh IVF/ICSI cycles without success and got our first BFP on IVF #3.

It can be a long, hard road. But, I hope you are able to find success. I spend most of my time on PAIF right now. But, feel free to ask me any questions you might have. Good luck!

sekura · December 2011

I'm also DOR. I don't know what your treatment plan is, but if you're not seeing an RE, I recommend it as soon as possible. I know that the chances of me getting PG on my own are very small, and even with IUI they aren't great. I have one more IUI (I have to do a mid-cycle test before IVF), then I'm planning for IVF in Jan/Feb.

As for how to deal with it--I just take it one day at a time. The toughest times are when I am not actively receiving treatment and on a cycle (I have a cyst right now, so am just waiting for AF). The hardest thing for me is knowing there's about a 30-40% chance I won't have genetic children. I know that I can (and will) use Donor Eggs if I need to, but I've always seen children as a sort of immortality, of knowing that part of me is living on. However, if knowing donor eggs is a highly viable option helps for you, then think on that.

Mrs.McIrish · December 2011

I am DOR as well but not from chemo. Snoangel on PAIF used DE as she had chemo when she was younger. Maybe you can page her on Paif??

Since your ovaries have been exposed to radiation and chemo, it is very possible that your eggs are already damaged. I would think IVF would be the way to go so that they can see the eggs and see if they fertilize and what the embryos look like. Then at least you know the quality of the eggs has been compromised. As for when you will go in to menopause: If you are still getting regular AF, you aren't there. For what it is worth, I will be in early surgical menopause because I have to remove my ovaries soon as I have the BRCA gene and am high risk for ovarian cancer. I will go on HRT once I remove the ovaries since I will be around 40 when I take them out.

Hugs.

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