We had her 9 month well visit today and I hated the questionnaire they gave me. She scored fairly low in gross motor, ok in fine motor and semi low in social, etc.
He said we may want to get a swallow study done (has anyone done this? are they awake? she's had an upper GI and has an endoscopy scheduled) since she is still clueless on how to eat solids, 3 months after we've started. Her weight was back up a little bit, but still down from where she was a few weeks ago. She was 17.3
He also said he had talked to her immunologist (I have shingles, so he had to call to see what to do about P & M) and that the immunologist told him her 'working diagnosis.'
I assume this is based on her most recent set of labs and we are set to go back in 6 weeks from today for recheck since she got more shots today.
Anyways, he didn't know that she hadn't mentioned it to met yet and I think he kind of regretted telling me but he said transient hypogammaglobulinemia of infancy.
I'm pretty sure that's what it was anyway lol I didn't write it down. So I guess that's not horrible and could explain why Peytons IGG is low and she's always sick too.
Her endo is Dec 6th to rule out eosinophillic esophagitis
At this point I'd just be happy to get an immune dx, we go every 2 months or so and they usually just send us to another doctor (hematology/oncology, GI, etc) and have yet to really tell me exactly what they THINK is wrong with her. They've told me what they didn't think it was.