Congenital Heart Disease Mama's

Re: Congenital Heart Disease Mama's

• peppercat01

  December 2010

  Hi Francesca I'm Elle and I guess I kind of fit into this category.  I was born with a bad mitral valve and multiple septal defects.  Last year I had my third heart surgery to replace my mitral valve with a biosynthetic valve just so I could have children.  It was recommended that I not get pregnant unless I got my valve replaced.  Right now I'm 29 weeks pregnant with a baby girl.  So far my pregnancy has been uneventful, but I am being closely monitored by my MFM doc and my cardiologist. 

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• sugarbear0524 member

  January 2011

  My name is Sarah, and I also had my mitral valve replaced with a biosynthetic valve (bovine).  I am 18 weeks pregnant with a baby boy.  I found out in early December that my pulmonary valve now has a moderate-severe leak.  I am being monitored very closely by my cardiologist and my high risk OB.    I'm hoping that the pulmonary valve issues are caused by the extra blood flow and strain on my heart and that, after the pregnancy, it will get better.  I have fluid in my lungs giving me a bad cough and fatigue.  No bed rest yet, just orders to take it easy.  I'm still working full time, though it is exhausting.

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• LisenKody

  August 2011

  Hi,

  My name is Lise, I have Tetrology of Fallot and am pregnant with my first child (I'm 25 weeks).  It's been an interesting ride so far, lots of out-of-town appointments (I live 5 hours away from a decent perinatal clinic).  I have an excellent OB here in town though, feel like I am in good hands.

  No problems so far, just tired all the time   I still work full-time, but am eager to get off work so I can focus on baby things   I work at a college, so we'll see how the September rush treats my already-weary body

  Cheers!

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• BethanyNC97

  November 2011

  Hi!

  My name Beth I am newly pregnant; I'm 10 weeks. I was born with a Tetralogy of Fallot. I have two heart surgeries as a child, and had a pacemaker put in at 22. I have always been active and healthy and never really considered my heart condition as as an obstacle in my life...until I got pregnant. I have an ever list of growing doctors and appointments. I will hopefully know at my next appt at 12 weeks with my high risk baby doctor if I have passed on my hear condition or not.

   If anyone has any advise about how to deal with a high risk pregnancy please let me know.

   

  Take Care!

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• BethanyNC97

  November 2011

  Hi There,

   So this is better late then never, maybe it will help someone in the future. I was born, 30 years ago, with a Tetralogy of Fallot. I had two corrections as a child and was able to not have a pacemaker until I was 22. I lived a very happy and healthy childhood. 

   My advised for anyone who children have the condition is to not focus on it. I was always aware that I was special, but I was not allowed to use it an excuse not to do something.  My parents put me in dance lessons at 3 to help me be active; I did not have my first correction until I was 5. I danced all the way through college, played basketball in high school, and even ran a few 5ks...much to my cardiologist?s dismay.

  I am newly pregnant, I?m 10 weeks, and will know at my next high risk doctor visit at 12 weeks if I passed on my heart problem or not. If I pass it on or not will not change how I feel about him or her.

  If anyone has any questions, please email me. Bethanylynn97@gmail.com

  Take Care,

  Beth

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