Update on 'nervous' post from yesterday

AlwaysSunny925 · October 2011

So we got what we thought were our ultrasound results yesterday from a fellow at the NICU. She basically told us both boys had no change in their bleeds from the last u/s. Although they both have grade 3 & 4 bleeds, we took this as good news since they said there are no blockages in the ventricles.

Fast forward to this morning, and it turns out that: 1. Ryan didn't even have an u/s yesterday. His is scheduled for tomorrow. & 2. Aiden's brain bleed is evolving and changing his brain matter. The doctor called it cavitation (I think). On top of that he hasn't kicked his infection yet.

We had a rough day today. Praying to God all day that the new antibiotic he was put on works and that his bleed doesn't evolve further. I'm scared for my baby boy.

katie4253 · October 2011

So many T&P coming your way right now. I can't imagine how stressed you are.

juju · October 2011

Thoughts & Prayers. Fellow NY'er here Are your boys at Columbia Pres by any chance Ihave some good contacts there i can put you in touch with. Nicu misinformation is the worst.

Cara03 · October 2011

I am so sorry. I would be livid with all of the false information you've been given. In fact, I'm angry for you.

You and your boys are in our thoughts and prayers. Sending lots of virtual hugs.

urbanflowerpot · October 2011

This makes me angry for you! What a mess up on their part - ugh! Hmm

That aside, I'm very concerned and will continue to pray for all of you. I'm so sorry.

kck329 · October 2011

Like everyone else, I'm very upset they keep giving you false information. You don't need that!

Sending lots of prayers for your family, especially your sweet boys. I hope you get more complete information tomorrow during rounds. If you can't be there, demand to talk to the head neo on their case. I can't imagine how stressed you are right now, please let us know if we can help in any way.

Natalie_may · October 2011

I'm so sorry you are not getting the information you deserve. Ts and Ps to you and the boys.

schenkertobe · October 2011

Lots of T&P for you sweet boys.

SushiNoMore · October 2011

I'm so sorry you had such a tough day. You and your family are in my thoughts.

AlwaysSunny925 · October 2011

juju:
Thoughts & Prayers. Fellow NY'er here Are your boys at Columbia Pres by any chance Ihave some good contacts there i can put you in touch with. Nicu misinformation is the worst.

No, we are at Northshore Manhasset which is supposed to be a very good NICU. Thank you anyway.

AlwaysSunny925 · October 2011

Thank you for all your thoughts and prayers. Hopefully tomorrow is a better day.

haziedaze · October 2011

Sending ((HUGS)) and tons of T&P your way. I'm so sorry you're going through this and hope tomorrow you get things cleared up with the team- that is so infuriating!

beyoga · October 2011

Hang in there, sending thoughts and prayers. Reid has a grade 3 ivh. It is very frustrating and scary.

sail123 · October 2011

I'm so sorry to hear this. Thoughts and prayers to your family.

Vine07 · October 2011

jnatkaniec:

juju:
Thoughts & Prayers. Fellow NY'er here Are your boys at Columbia Pres by any chance Ihave some good contacts there i can put you in touch with. Nicu misinformation is the worst.

No, we are at Northshore Manhasset which is supposed to be a very good NICU. Thank you anyway.

I'm so sorry you are going through this...T&P to you! Btw, my DD was born at North Shore Manhasset and I have nothing but good things to say about their NICU...so sorry that happened to you! Feel free to PM me if you need to chat or need anything at all; I am close by!

OscarQ · October 2011

I hope Ryan's u/s has better results and that you get better news about Aiden soon.

bhilyer · October 2011

I'm late to this post, but I hope you get some answers today. Put your foot down and demand to talk to the attending doctor.

It's so frustrating when you get misinformation, especially when it's your LOs involved.

Email me or FB message me if you need to vent, cry, or b!tch. I'll be glad to listen.

CLAYLIOVER · October 2011

Lots of thoughts and prayers!

neko621 · October 2011

I cannot even begin to imagine how stressed you must be. Sending lots of positive thoughts your way.

Deblondie1 · October 2011

Thoughts and prayers to your family. I'm sorry you're dealing with this.

jcsntms06 · October 2011

You are in my thoughts and prayers.

Mrs. Alice · October 2011

So sorry you are having a rough time. I hope and pray tomorrow is a better day. Big hugs to you!

njdcgirl · October 2011

I'm sorry that you were told the wrong information about your son's u/s. Sending lots of prayers that Aiden's condition improves too. I'm sure you are scared and worried sick. Wish we could do more for you.