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febrile seizures

akayfakayf member
in Pre-School and Daycare

DS1 has a history of febrile seizures.   He had a series of 3 of them in a 5 hour period in July 2010 and another in Dec 2010.   Both times he was sick(ear infection in July, stomach bug in Dec).   In June of this year, he had another seizure but didn't have a fever.   He spiked a fever several hours after the seizure.   His neuro said that is still considered a febrile seizure.  

He had another seizure yesterday while we were at the farm picking apples. No fever again.  We spent the afternoon in the ER and they sent us home with instructions to make an appt for an EEG in a few weeks.   He had the seizure at 12:30 and at 9PM, had a  low grade fever(100.0)   I have to call his neuro next week to make the appt for the EEG and will ask her if we are going to consider this another febrile seizure or not since he didn't develop a fever  until almost 9 hours later(the June one, he had a fever about 4 hours later)

He has a class trip at the end of the month...ironically the same one we were at yesterday.   The permission slip said no parents but I'm wondering if I should force the issue.  I am willing to follow the bus if that's the reason why they say no parents...they don't want them on the bus due to insurance issues if they get in an accident.   I don't want him to miss the trip but really don't feel comfortable if I'm not there, just in case.   He has school tomorrow and I'll be talking to his teacher about it.   Who knows...she might say that I HAVE to come on the trip now.  

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Re: febrile seizures

  • Mrs MannersMrs Manners member
    How is leaving him for the field trip any different than leaving him to go to school on a normal day? I guess I feel like of you are ok with one, you would be ok with the other. A seizure could happen either time, right?
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  • akayfakayf member

    imageMrs Manners:
    How is leaving him for the field trip any different than leaving him to go to school on a normal day? I guess I feel like of you are ok with one, you would be ok with the other. A seizure could happen either time, right?

    It's the time away plus the distance.   He is only in school for 2.5 hours plus it's local(5 minutes from my house)   If he has a seizure there, I can be there within 10-15 minutes to take him to either the dr or the ER.  The farm is 45-50 minutes away.   

    I told the teacher I was a little concerned about the trip and she said right away they most likely are going to need parent chaperones so I'm going to be one.   I'm following the bus in my car.

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  • VTbride05VTbride05 member
    Personally I would push the issue of being allowed to go or keep him home. If you just went on the trip he wouldnt be missing that much right? My son had a febrile seizure in the winter and I am still hesitant to let him out of my sight.
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  • BUmamaBUmama

    My oldest had a seizure disorder as a baby, so here is some info for you.

    I would definitely get him an EEG and push for a neuro consult as soon as possible. Tell them you'll take a cancellation appt and you can get in faster, less notice, but quicker appt.

    Also, you can develop a low grade fever following a seizure as your bodies reaction to the seizure, so I wouldn't necessarily say it's a febrile seizure. Definitely go on the trip with him. Also, see if you can write down what was happening when the last seizure happened. Sometimes it can give you a clue as to whats going on.

    Good luck. If you have more questions, feel free to ask on the SN board, we have a number of seizure mommies over there.

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  • cmanmomcmanmom

    I work for a child neurologist and because your DS has had several febrile seizures it does mean there is a higher chance that he could have a seizure disorder.  One does not equal the other, and and EEG does not rule one way or the other unless he happens to have a seizure DURING the EEG.  But it is not invasive and needs to be done. 

    I agree to push for a consult with a pediatric neurologist and tell the front desk you can come if there is a cancellation, maybe even stop by and ask for the intake forms so you can fill them out and have them ready in case they have a cancellation or no show you can get there asap and be seen.

    Sounds like you have the field trip thing figured out so yay for that.  Just remember he needs to take extra precautions around heights and DON'T leave him alone near or in water.  We had a near drowning with a patient MUCH older (like in their teens) that was swimming alone and had a seizure.

    If your DS is diagnosed with a seizure disorder, remember it is managable, he will live a normal happy life, and there is a chance he will simply outgrow it.  We have adult patients here that were first seen and diagnosed as children that have normal happy lives, are married with kids (that do and don't also have seizures) and you would NEVER know they have a seizure disorder if you didn't work here :)

    Best of luck :)  It's scary stuff but with a good doctor you both love, it's going to be fine!

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