- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Special Needs
lesleytaylor
member
Landon's 1st Birthday party
lesleytaylor
member
So we had Landon's 1st Birthday party yesterday. It went really well. I thought it would be hard but it wasn't. There was just one thing that happened though..... I invited 2 other special needs moms (both of their children have Downs). I was sitting with the one mom who proceeds to tell me that the first time I came to her house with Landon she had to go upstairs and cry (I didn't notice this at the time) and that after I left she googled Landon's condition and cried again at all of the horrible things that she read. Her point in all of this was to say that he is doing so well and will really be a miracle. Sometimes I really wish people wouldn't bring up how hard Landon's diagnosis is. I don't want to know that you are sitting home crying for me/landon/us.
I finally told our aqua therapist what Landon's diagnosis is and this past week she said something like, "maybe he just won't ever crawl". This is why I try not to give out his diagnosis because people google and no matter how many times I tell them that Landon's case is very mild they still make assumptions from what they read online. I think I will be dropping aqua therapy. He already gets EI twice a week, Cranial Sacral Therapy, MEDEK exercises and Feldenkrais.
Anyway....Here is a pic of Landon smashing into his cake (we helped with his hands)
This discussion has been closed.
Re: Landon's 1st Birthday party
Happy Birthday Landon!
It looks like he really liked his cake!
I get it about not wanting to share a dx. Nate's issues always sound worse on paper than how he really is and googling his stuff always sounds worse too.
Hang in there! You are doing awesome and Landon looks like he is happy and having a great time! That is all that matters.
Oh My! He looks like such a big boy in the picture!!
Peyton's dx sound 'worse' on paper too. Yes, she has a lot of issues & she has been through a lot but she is not your typical CP child, etc.
I wouldn't necessarily be angry at her (the emotion I was sensing from the writing, could be wayyy offf though) Maybe she is just a sensitive person and i'm sure she didn't mean to offend you.
I would much rather someone take the time to be a little sad for what Peyton has to endure and the time to research her dx than just be annoyed at all of her dr. appts/therapies.
I hope that came out right. And I really can't believe how big he looks in the picture.
You have a toddler now!!
soo cute! xavier had that same shirt for his 2nd birthday
i am also the same way...we do not share x's official dx. people google and take away the worst things. google isn't the be-all end-all of things so that's why i don't want people googling things. my one friend especially does this. she had googled a syndrome the dr's thought x had before we left the nicu then after he didn't have it she told me she googled it and how horrible it was. we take the "people who need to know know" approach.
He is a cutie! I feel awful that someone who also has special needs would admit to you that she cried for you and your child based on his diagnosis. I thought being a mom of a baby with Ds she would understand that while genetics play an impact they're not defining. Some kids are greatly affected while others, minimally.
It looks like his party was an absolute blast, did you use the birthday CD?
What a great photo! He looks so happy!
And nobody really knows what Landon will do. So I say focus on the positives and not the maybe he won'ts.
My DS freaked at the cake and hated it. Now, at 2, he likes cake. But not at 1.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
Lesley, he is gorgeous!
He does look like he's having fun, and I love his hat.
I understand why that woman's comment would bother you; it would bother me, too. She could have let you know how objectively great Landon is doing in a more sensitive and graceful way, but that's her issue. Today at the park, a woman asked Owen's age and when I told her, she said, "Oh, he was premature, wasn't he?" When I said that he wasn't, she almost seemed about to insist that he was. Then, she saw his hearing aids (which she tried to touch!) and said, "Are those hearing aids? Poor thing."
Anyway, thanks for sharing the picture and happy belated birthday to Landon!
He is so cute and happy!
Happy birthday, little guy!!!
I agree with the other ladies. People say dumb things because they don't know how to deal with their own emotions about what they imagine our kids' lives to be. It can be a real buzz-kill. I do wish people would just live "in the moment" with the kids instead of seeing every interaction through the lens of the kids' level of ability. It's hard, though. Often they are nervous about hurting feelings, etc. And they get caught up internalizing what they think it must be like for the kid or the family.
The next time someone says, "he might not do blah blah blah" you can always say "Landon is writing his own story. We will not close the book on anything prematurely." Or something to that effect.