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kbowman78
member
Results of Cason's appt. with allergist
kbowman78
member
Well, I guess it could have been worse, but not much. Based on skin prick testing, dr. thinks wheat and soy are what is causing his eczema, so he wants us to eliminate those. There is wheat and soy in EVERYTHING. I'm feeling ovewhelmed right now. Also, very bad allergic reaction to peanuts and some tree nuts, so have to avoid all of that. We got a prescription for 4 epipens. He also showed up as being pretty allergic to dogs and horses.
I'm really nervous about this. I don't know how it's going to work out. I'm going to grocery shop this weekend and try to find gluten free bread/pasta. Cason is already a very picky eater, so I don't know how this will play out. As far as the peanuts, the thought of using the epipen totally freaks me out. Any advice from food allergy parents would be welcomed! Thanks!
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Re: Results of Cason's appt. with allergist
My mom had an epipen. They aren't hard to use and she taught me how to do it. So don't be afraid of using one. I've been meaning to get allergy tested myself but I have never gotten around to it. I hope you get this figured out. Maybe the allergist can give you idea for how to get around his allergies. Good Luck!
Did the dr say he could grow out of the wheat and soy? This was my fear when I got in there about the soy. Milk is what he doesn't tolerate very well and I went through the milk protein allergy with Wes. I had to go through every baby food jar and every snack until he was over a year and not buy anything of milk.
Whole foods is going to be your best option to find things without wheat and soy. Once you do about 3 rounds of grocery shopping and trials it will get easier.
Look at Buddy Fruits (not sure if you have already) they are soy and wheat free. Some of the ones at Target are all free too in the pouches.
Nate is a very picky eater too. I know how you are feeling and what you are going through.
Epi pen...I always had to carry one too because my allergies to bees. The issue with it is that you have to keep it at a certain temp. Read that before you take it on a HOT trip. Also keep a bottle (they might have the travel sizes) of benadryl. You can give that too to help with an allergy attack.
Just make it a point with your family members not to give him ANYTHING without asking. I know people would just go and feed Wes with the milk protein without thinking and it would have it in there.
Look at Sunflower butter. It is a sub for peanut butter. Not sure if it has wheat in it. But that might be your "new" peanut butter.
Hang in there. You will get use to this and it will be a part of your everyday life and will become more simple.
***Twin fraternal girls born at 35w6d in 12/2008***
Oh, that's awful! I'm so sorry to hear that you got disappointing news, even though you say it could have been worse. I'm no expert at all but I was just reading something that mentioned online grocery shopping for gluten free products. I know for sure that Trader Joes carries a good number of them, too. Maybe do a Google search for recipes, cookbooks, support groups, etc.?
On a more positive note, I wonder if the reason he's a picky eater is because he's been eating things that exacerbate his allergies/eczema and maybe once you give him a simplified meal plan he'll start chowing down? Hoping that's the case; I know how much we all worry about our babies. Hang in there and keep us posted on how you both are doing!!!
I know you can find some of these at target that is soy and gluten free. Nate LOVES the alphabet letters and fish sticks. They have other options online that I didn't know about but maybe your able to find at Whole foods.
https://www.iansnaturalfoods.com/allergen_free.html
Here are things on labels you need look for and not buy:
SOY FREE DIET
Avoid foods that contain any of the following ingredients:
miso
shoyu sauce
soy (flour, grits, nuts, milk, tofu soy bean sprouts)
soybean (granules, curd)
soy protein (concentrate, isolate)
soy sauce
textured vegetable protein (TVP)
tofu
Ingredients that MAY indicate the presence of soy protein:
flavorings
hydrolyzed plant protein
hydrolyzed soy protein
hydrolyzed vegetable protein
natural flavoring
vegetable broth
vegetable gum
vegetable starch
Studies show that most soy allergic individuals may safely eat products containing soy lecithin and soy oil.
WHEAT/GLUTEN FREE DIET
Avoid foods that contain any of the following:
Please note that this list is a compilation of the most common but not ALL the possible wheat/gluten foods and ingredients.
bread crumbs
bran
cereal extract
acker meal
enriched flour
farina
semolina durham
gluten
high gluten flour
high protein flour
vital gluten
wheat bran
wheat gluten
wheat starch
whole wheat flour
oats
barley
Ingredients that MAY indicate the presence of wheat protein:
gelatinized starch
hydrolyzed vegetable protein
modified food starch
modified starch
natural flavoring
soy sauce
starch
vegetable gum
vegetable starch
Good article and give you help with recipes:
https://www.whfoods.com/genpage.php?tname=whfkitqa&dbid=10
Check out the food allergy board. There are some super-experienced moms on there who can give you lots of tips and tricks. They also understand how hard it is to have a child with allergies.
I've had to cut out dairy and soy due to a suspected milk protein allergy in my LO, and that board has been a great resource. It's really overwhelming at first, but you'll soon find that reading labels is second nature, and you'll develop a list of safe foods. Hang in there and GL!
Baby K ~ born July 1