March 2012 Moms

Is anyone NOT doing the NT scan?

I'm just curious ... have any of you ladies decided NOT to do the first trimester screen, NT scan thing? I am only 23 years old, healthy and have no family history of birth defects. I decided not to do the NT scan because I didn't want to cause undue stress to myself, if I were to get a false positive. I tend to stress a lot, and I know I would panic if anything looked even slightly risky.

I have 2 questions:

1.) At the anatomy scan later on, will they be able to detect Down Syndrom or other major things?

2.) How common is it for low-risk women to get the NT scan anyway? I feel like everyone I've talked to has done it, even though they have no risk factors.

 

Re: Is anyone NOT doing the NT scan?

  • *Syndrome. Oops!
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  • I'm not having it, in fact it's not even offered anywhere around where I live. They send high risk women an hour away to have it done if they wish.

    As far as the questions, the NT scan only tells of the odds of your child being affected by Down Syndrome, not if they have it. If you get high odds like 1 in 10, then you would be offered further testing like an amnio. That is the only way to know for sure if the baby has something like Down Syndrome. At the anatomy scan they look for markers, basically things that are more likely to be present if the child has Down Syndrome, but again the only way to know for sure is through an amnio.

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  • I'm not having it.  It actually wasn't even offered to me.  I'm 28, healthy and I was already tested for the only genetic disease that has ever manifested in my family.

    At my 12 week appointment this past week they drew blood for the first part of a screening (the second part will be a blood draw at my next appointment).  The two blood samples assess risk for Downs syndrome, Trisomy 18, Neural Tube defects and SLOS.  If there is a screen positive result, they'll send me for additional tests.  So it's not the same as the NT scan, but I guess it checks for similar things.  It's part of the California prenatal screening program.

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  • We are not doing it either. We decided that we wouldn't do anything with the results. We love our baby either way. =)
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  • imagekaj2010:
    We are not doing it either. We decided that we wouldn't do anything with the results. We love our baby either way. =)

    YesYes  This for us too. :)

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  • i am not getting it either.   It would stress me out and I don't need to be working full time and stressing over somthing that *may* or *maynot* be.  
  • We did not do it. We will keep and love the baby either way, so we decided against it.
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  • I'm healthy, young enough, and no history in my family. 90% of abnormalities are born to women with no family history.
  • I'm not getting it done! My husband and I know that regardless of the outcomes of those tests, we would still keep and love the baby, so we decided that made the tests pointless to get done. :)

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  • Since it just gives you an odds of an issue, we decided against it.  I knew I wouldn't get the amnio, and i didn't want to spend my whole pregnancy worried.  I also know that there are so so many disabilities that they can't test for and you have to deal with the outcome.  I also think terminating for Down's is morally incomprehensible to me.
  • I can't quote, but that I don't get. I'll love my baby too. I love it enough to know what if any special needs it may have. I want to know and learn if it will have special needs. Will need special medical attention at or after delivery. Want to know if dr should look closer at the heart to prevent something horrible happening. And trisomy 13/18 have a high chance of a stillborn and if alive most don't make it a week, if lucky a year. As a loving mother I want to prepare for those things so I can give any baby the best chance it has. ETA: no one says you have to abort if you get less than stellar results... Pretty sure 99% of us doing testing would keep a baby no matter what. But I read books about having a healthy baby. Why would I not want to give the same to a special needs baby?
  • imageLilyPotter218:
    I can't quote, but that I don't get. I'll love my baby too. I love it enough to know what if any special needs it may have. I want to know and learn if it will have special needs. Will need special medical attention at or after delivery. Want to know if dr should look closer at the heart to prevent something horrible happening. And trisomy 13/18 have a high chance of a stillborn and if alive most don't make it a week, if lucky a year. As a loving mother I want to prepare for those things so I can give any baby the best chance it has.

    I definitely think it's inconsiderate for others to say that if you get it done you don't love your child.  Obviously that's not true.  We would have done it if we could have had more certainty about neural tube defects because of my Lyme situation.  But as I said above, there are very few disabilities that they can test for, and those disabilities will still change your life even though you didn't know about them ahead of time. 

  • Books. Thank you. I get it's a choice and some have good reasons not to!! But for people to assume anyone getting it means we would not love a child and just toss it in the trash pisses me the fvck off. :)
  • We are not doing it either because we are not willing to to the next step and do the amnio, so basically the NT Scan was pointless if we wouldn't do further testing.  

    I am pretty sure that the a/s will detect any large issues.  Our friends passed up the NT Scan, but during the a/s they were given an elevated risk of having a baby with downs syndrome (everything was fine when there son was born).   

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  • we declined
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  • We did not opt for it and my doctor recommends that all of her patients decline the testing if they are not going to do anything with the results (such a terminating the pregnancy).  We have had the conversation with her and she doesn't recommend it because of the risk of a false positive.

    They will be able to see a lot with the anatomy scan.  If anything shows up as off, they will probably refer you to a specialist.

    I don't know anyone who has done it in real life---just on this board.  I'm low-risk and even though we have a 50% chance of our LO having a rare brittle bone disorder that would be inherited from DH, we choose not to do any of this testing since it doesn't change anything.  The only way to detect that is through an amnio and there's too much risk of miscarriage for me to feel comfortable.

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  • Can't speak for everyone else but for us we are the same, no risk factors so we opted out.  I kinda feel like I'm in the minority on that choice but it's the right choice for me so that's all that counts.
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  • We didn't do it either. I wouldn't change anything if the baby did have an issue, and I also think there would be plenty of time to prepare for a child with special needs while they're still an infant.
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  • My doctor advised against it. She said I didn't need the added stress and she has the seen the results be incorrect too many times to advise for someone under the age of 35. So with that we declined as well.
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  • We are not doing the screening for the same reasons as many other posts here, didn't want to stress about something that isn't 100% accurate. Plus our friends got a false positive on their first results and were freaking out for no reason cause they have a healthy beautiful little girl now. 

     

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  • We did do it as I have a first cousin with Downs.  His parents did not know in advance and I watched the struggle.  There is sooooo much that needs to be done RIGHT AWAY with a special needs baby.
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  • We did not do it.
  • We didn't do it either. I have to see a high risk dr anyway & they measure & look at so much stuff. I didn't see a need to do it now & then again in a month.
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  • imagekaj2010:
    We are not doing it either. We decided that we wouldn't do anything with the results. We love our baby either way. =)

    As LillyPotter has already said for herself, this type of response COMPLETELY pisses me off, as the implication is that if one does decide to do the test, it's because they wouldn't love their baby if something was wrong. That is BS.

    My doctor recommends the NT scan for every patient. Although it looks for downs and the two trisomies already mentioned, other things can be revealed as well. For example, one of my friends discovered a missed miscarriage that had happened 4 weeks earlier. Another girl right on this board discovered her baby had no brain development. These are rare, but I for one would not want to first learn these things at 20 weeks. Also, as others have already said, if you get tipped off at the NT scan that something may not be right you can do other screening down the road (not necessarily amnio) that can give you more answers and allow you be more prepared at birth, mentally and physically.  

    PS: The risk of miscarriage from an amnio, while not zero, is between 1/200 and 1/300.  That's less than 0.5%. With a very experienced doctor it's even lower. While it's difficult to imagine putting oneself at any risk, I think the risk is way overblown in people's minds. 

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  • We declined this time. Took the pleasure of having an extra u/s with our son. Unfortunately we got bad results. I did do a whole bunch of research on down syndrome but I have to say the remaining weeks of the pregnancy I had so much worry., I did not feel like I had the enjoyment of pregnancy and other ladies were jealous of our MANY additional ultrasound. I would have gladly switched places. Really it it hard to determine the severity of down syndrome until well after birth, so I don't know how well prepared you can be (for yourself I get it, but for your kid you just don't know). Our son was one of the false positives that had a measurement of 3.3mm and three additional soft markers identified. Everyone loves their baby regardless if they get th test done,getting the NT scan is a very personal decision and people shouldn't object when others decline or go through with getting the scan. I had no risk factor other than age last time around (I was 30 and DH was 36 last time around)
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