Early onset IUGR

agran · September 2011

anyone have any experience here? I lurk mostly but am desperate for some insight.

We did IVF to get pregnant. Everything was going great until an ultrasound yesterday at 21 weeks. The peri told us there is no hope our little girl will survive. She is 3 weeks behind due to placental failure. Only offered hope if we could get her to be about a pound she might survive outside the womb. But were basically told to go home and wait for her heart to stop beating.

I know he doesn't know our history but we are beyond shocked and upset. We'd just let ourselves get attatched to the baby. Just let ourselves believe we'd finally have a family.

I've put myself on bed rest and head to another peri tomorrow for another opinion but would love some stories. I don't even know what questions to ask. I just keep getting told it's nothing I did and there is nothing that can be done.

Bread09 · September 2011

I'm so sorry. I have a similar situation and my recommendation would to be to get a second opinion! I'm glad you're going to the Peri tomorrow.

We were told at our A/S that Baby A was measuring 5 weeks behind and had a heart defect. The MFM that saw us gave us no hope for her to survive because he thought she had a form of skeletal dysplasia which was causing her to not grow very much and to not be proportionate. We declined and amnio because of the risk to Baby B and set up an appt with a ped cardiologist for a fetal echo to see if the heart could be repaired--it could, if she grew. We decided to remain hopeful and were disappointed when my OB agreed with the MFM and said that there was no hope for Baby A and I most likely wouldn't make it beyond 28 weeks with either Baby.

We ended up switching to a high risk practice attached to a children's hospital with ped cardiologists at 24 weeks. The MFM there did a growth scan and Baby A was growing, albeit, at a much slower pace than Baby B. He was very hopeful as was the team of cardio surgeons. I was just back there yesterday and Baby A is still growing, still on the growth charts (the low end), still about 4 weeks behind, but is catching up. They still aren't quite sure what the issue is and placental issues have been brought up as well as a chromosonal issue as well as the fact that she may just be a smaller baby. All the MFMs think I can get to 36-38 weeks and have prepared us that we may be dealing with Baby A being stillborn, but they think that risk is very small.

We are proud of our little fighter and we're hoping that she keeps growing and doesn't fall off the growth charts. We have a lot of hope and we enlisted family and friends to hold on to that hope and positive energy on days when we can't. I think about various outcomes often and I know this is a risky situation.

I don't know if this helps (sorry about the rambling) but don't lose hope--it's early--get a second opinion, see what the peri says and breathe...I have to remind myself of that often! I wish you the very best and please update. Feel free to PM if you have questions.

Sorry this is so long!

Sunshine05 · September 2011

I'm so sorry, I've just now in the past week truly fallen into the IUGR category. Baby has been progressively measuring smaller and smaller at each u/s since our anatomy scan and is now at 6%. They believe it to be a placental failure as well, but are monitoring me twice a week to catch the "tipping point" of when it stops being safe for her to be inside and then they'll deliver her.

I don't have any information for you on early onset IUGR but I would definitely get a second opinion with a MFM/perinatologist before accepting their diagnosis. Hopefully you will be able to still keep her cooking to get her past viability. As long as there is some nutrition/blood going to her from the placenta then she still stands a chance. *big hugs* and T&Ps coming your way!

mikeandangie · September 2011

I don't have any advice, but I just wanted to say I am so very sorry you are dealing with this. Many (((hugs))) and I hope a second opinion will bring more encouraging news.

scooterq · September 2011

I don't have any advice or experience to share, but I just wanted to offer a big ((hug))! I am so sorry! I hope you can get some better news and info from your 2nd opinion.

jb2rn · September 2011

I truly hope another opinion may be better and give you brighter news.

I am so sorry you were given such devastating information. Hugs to you.

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