Adelaide is here and she needs your thoughts and prayers
uterusdreams
member
Hi ladies,
I'm sorry for being MIA on PgAL lately. Things have been busy the last few weeks getting ready for LO and wrapping up work.
Adelaide Zoe was born at 7:25pm on Thursday, 9/8/11 via C-section after a 48 hour unsuccessful induction process. Adelaide did NOT want to descend into the birth canal so a C-section was how she entered this world... and when I got to hold her after she finally got here, it was by far the best moment of my life so far.
Unfortunately, we found out early this morning that she has a severe heart defect called Hyperplastic Left Heart Syndrome. She was transferred to a different hospital this morning and will be having surgery later this week. While the doctors still need to do some testing to make sure everything else is okay (determining if there are any other abnormalities, etc.), so far we've been told that as far as her condition goes, things are as favorable as they can be for her to have a successful procedure later this week. It will be the first of a series of three surgeries, and it looks like it's going to be a long road ahead.
If you pray, please pray for her. If you don't, please keep her in your thoughts. I know I'm biased being her mother, but Adelaide is truly a special baby... she is the sweetest little person I've ever met and everyone who has met her so far is already wrapped around her little finger. Being with her over the past few days and being able to hold and breastfeed her has changed my life forever and her father is just enamored of her as well. Obviously the two of us are scared out of our minds, but we know she's in the best hands possible.
A side note that makes me believe completely in miracles... how we found this out is, last night around midnight my feet were really swollen and I had a shooting pain in my right calf. The nurse/doctor ordered an ultrasound to check things out for me, and we ended up checking Adelaide into the nursery while we went to the u/s. We had been rooming in since Thursday and had never put her in the nursery, but my husband wanted to go with me to the u/s and so we checked her in for a bit.
As soon as the u/s was ordered for me, my pain went away and I felt better, but they did it anyway and everything checked out okay. However, in the short time Adelaide was in the nursery, a nurse happened to notice that she got a bit pale and had some irregular breathing. This triggered a series of events leading up to an EKG that discovered her heart condition.
Had I not had this random pain in my leg that went away almost as soon as it started, we would have never put Adelaide in the nursery and this might not have been discovered. And in most cases what happens is it's NOT discovered until the baby gets really sick really quickly after they've already been at home, and a lot of times that means it's a lot more challenging to get through things. So I am counting my blessings that things happened as they did. Why did my leg hurt? So we would put her in the nursery so this would be discovered so we can treat it and so she can grow into a healthy and beautiful person and life a full life. I just can't get over the fact that otherwise, we would have brought her home today and... well, who knows. I don't want to think about it. But all I can say is, I don't know that I've ever experienced a true miracle or religious moment before last night, and it's my firm belief that this happened the way it did for a reason. Someone is looking out for her.
That said... we are on our way now to go visit Adelaide and this will probably be a post & run because I have a feeling the next few days are going to be a blur. I would really appreciate your thoughts and prayers, as would my husband and dear Adelaide.
I will provide updates as I can... in the meantime, here's my favorite picture of Adelaide. I took it early Saturday morning right after I had fed her and she was just laying in my arms looking right up at me - completely alert, completely content, and perfectly beautiful.
Re: Adelaide is here and she needs your thoughts and prayers
MTHFR 2 copies of C677t mutation homozygous 2/2010
Baby A born via c-section 1/10/12 @38w3d
BFP #1 11/4/09 m/c 4w3d baby crab
BFP #2 12/4/09 m/c 9w3d baby lion
BFP #3 7/1/10 m/c 4w1d baby fish
BFP #4 5/8/11
BFP #5 8/17/12 10dpo beta 7
First of all, Congrats on your little girl. She's beautiful.
Secondly, the heart problem you described, thats the same one that SurferGirlKona (or something like that, someone who was here on PgAL when I got here) was dx'd with. Just thought I'd mention that as its always nice to 'know' someone who gets what you're going through.
Here is the link to Kona's blog: https://onebigmiracle.blogspot.com/
BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11
BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14
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~All AL'ers welcome~
Proud mother of two breech babies:)
BFP #2 due on 2.17.12 - Happy Birthday Brooks 2.11.12
BFP #3 on 11.14.12, M/C 12.3.12 @ 7W, 1D
BFP #4 due 12.11.13- Happy Birthday Taylor @ 34w, 2d
- 30w+1- pPROM and hospital bed rest till DD comes
APS, hetero factor v leiden & MTHFR
bfp #1 - 12.11.07, edd 8.14.08, mm/c 1.21.08 (10w4d)
bfp #2 - 4.4.08, edd 12.3.08, mm/c 5.14.08 (11w)
bfp #3 - 8.3.08, edd 4.15.09, mm/c 9.17.08 (10w)
bfp #4 - 1.15.09, edd 9.26.09, mm/c 2.16.09 (8w2d)
bfp #5 - 6.16.09, edd 2.25.10, mm/c 7.23.09 (9w)
bfp #6 - 8.12.10, edd 4.27.11, mm/c 9.16.10 (8w1d)
one more try -> bfp #7 - 2.11, our miracle baby boy arrived 10.11
ttc again -> bfp #8 - 5.3.13, edd 1.13.14, mm/c 5.30.13 (7w3d)
BFP#1 - 9/2/10, EDD 5/14/11, Twins Hannah and Liam lost 11/7/10 @ 13w1d.
BFP #2 - 2/9/11, EDD 10/13/11, LO lost 2/13/11 @ 5w4d
BFP #3 - 5/9/11, DS born 1/13/12
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~*~Labor Buddies with Sweet Turnip - Welcome Baby Girl 2/23/12 & Aluenna - Welcome Ivy 1/6/12~*~
Camryn Nicole born 08/24/04 Dillon Joe born 10/24/07 m/c 06/21/2009 m/c 11/29/2010
BFP!! 06/14/2011
"Where hope grows, miracles blossom"
Dx: MFI- 3% morph
IUIs: Gonal-F + Ovidrel + b2b IUI= BFNs
IVF with ICSI= BFP! EDD 11/25/11
3/18- Beta #1 452! 3/20- Beta #2 1,026!! 3/27- First u/s- TWINS!
Our twin boys arrived at 36w5d due to IUGR and a growth discordance
Be kinder than necessary, for everyone you meet is fighting some kind of battle.
Ella born 12/21/11
BFP-2/4/10 EDD-9/27/10 M/C-2/11/10 7w3d D&C and Methotrexate-2/19/10
BFP-11/21/10 M/C-11/25/10
Clomid Cycle #1-BFN
Clomid Cycle #2-BFP-1/18/2011 M/C-1/26/2011
BFP-5/18/11 Riley arrived 2/3/12 8lbs6oz 21.5in
First of all, Congratulations! She is beautiful!
I will be praying for your sweet baby girl. I am so glad that they detected her heart condition before you went home. I don't know if you listen to Christian music, but there is a band called Sanctus Real, but the lead singer has a baby that was diagnosed with that in utero. He is doing well now and I think he is a year or so old. This is their blog about Baby Bowen if you are interested.
https://bowensheart.com/
Please keep us updated.
ITS A BOY!!!! Born 11/13/11 BFP #4: 10/29/12 edd 7/11/12
The third time was the charm!
BFP #3 ~ 4.08.11 ~ EDD: 12.17.11 ~ DD born 12.13.11
BFP #2 - 8.04.10 - missed m/c discovered 8.31.10, d&c 9.02.10
BFP #1 - 5.20.10 - m/c 5.29.10 @ 5w6d
BFP #1 5/2010 - Missed m/c at 8 weeks
BFP #2 2/2011
Baby G welcomed with love and relief 10/2011
Surprise BFP 1/8/2013...say what? Baby A arrived 9/2013
Motherhood is not for wimps
BFP 5/9/10. U/S - no heartbeat 6/2/10 (7 weeks). Induced miscarriage 6/7/10.
Chemical pregnancies 12/2/10, 1/3/11, and 2/7/11.
dx: RPL due to poor quality uterine lining; begin progesterone January 2011
BFP 3/10/11. EDD 11/19/11. E arrived 11/15/11!
Loss Blog | Life Blog
Justin + Laura 10.18.08
TTC #1 09.10/Dx PCOS 12.10/BFP #1 12.29.10/EDD 9.10.11/Missed m/c 2.3.11/D&C 2.15.11
“Ever has it been that love knows not its own depth until the hour of separation.”-Kahlil Gibran
Cycle #1 4.2.11 + Clomid = BFN/Cycle #2 5.9.11 + Clomid + Trigger Shot = TWINS!
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Another baby on the way! 8.25.14
DD#1 9-4-04 *** DD#2 10-15-07
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BFP#3 9-4-13 Benjamin Lee born 4-28-14
DD born 4/3/10 BFP 4/9/11 missed mc @10w4d- forever loved
BFP 8/21/11 EDD 4/29/12
::Lurking from TTCAL::
Congrats on your baby girl. Our little girl was diagnosed with HLHS in utero. Her case was extremely severe though. HLHS is pretty serious, but I know Adelaide will be strong. I am so happy that they found this out while she was still in the hospital. They will be able to keep her pain free until she has the first surgery. I will be praying for you and Adelaide. Our angel Claire will be watching over her too.
Dx: Me: Recurrent Pregnancy Loss; DH: Low Morphology (2%)
BFP#1: MC 3/1/11 at 6w1d - EDD 10/21/11
BFP#3: MC 2/8/14 at 4w5d - EDD 10/13/14
BFP#6: CP 11/6/14 at 4w2d - EDD 7/14/15
IVF #1 with ICSI & PGS: May/June 2015, ER 6/3/15, 17R/17M/15F
IVF #2 with ICSI & PGS: July 2015, ER 7/16/15, 16R/11M/9F
PGS results = 6 normal embryos (4 boys, 2 girls)
FET 9/23/15 = BFFN
BFP#3 - 6/5/11 - DS - 2/10/12