Special Needs

We got a diagnosis .. update & questions

So I posted here a long while back about my concerns with my daughter, Imogen, possibly having autism. Well, we finally got in to see the developmental ped. & she confirmed that she is high-functioning autistic (please don't ask me where on the spectrum she is, the Dr "didn't want to put a label on her"). We've been having her in speech therapy since March & occupational since June & she has shown some improvements. We also started her on a gluten free diet 2 months ago ( which is kinda hard to do in this town) & she's been a lot happier.

Now that I've got the backstory out of the way, Imogen turned 2 on Sunday & someone suggested that we should start potty training her. She still doesn't communicate when she is soiled very often (sometimes she'll lay on the diaper pad, but half the time she's not even dirty). I've heard that rushing potty training could cause psychological damage to young kids & "she'll let me know when she's ready" .. but how will I know if she can't even tell me she is dirty with consistency?  

I don't even know where to begin!! Any books y'all could recommend or personal stories to share? Thanks! 

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Re: We got a diagnosis .. update & questions

  • Personally, even with a typical child I wouldn't potty train until they're ready. I'm not sure about doing psychological harm but it most likely won't even work.

    Why does she have to be potty trained?  2 is still pretty early.  My nephews are typical and they're just day time potty trained now at 3. 

    why take someone else's advice for your child?  Follow her cues.

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • I'm sorry to hear of her dx. Even when we expected it with DS, it still was a bit of a blow to have it confirmed. It sounds like you have some great things in place for her!

    Regarding potty training, I have the same questions! DS is nearly 3.5 and seems nowhere close to being able to communicate the need to potty. He still wakes up wet in the morning and after naps, so I'm just not sure he's ready yet. I do get the occasional comment about it, but I have enough on my plate without stressing us both out about the potty if it's just not going to happen yet. Eager to see what others have to say.

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  • I personally wouldn't be worried. DS (pdd-nos) showed signs of readiness when he was 32 months, so that's when we started. At 24 months he wasn't communicating very much at all, but at 32 he was much further along. We did a PT seminar for parents of kids with ASD and I will say that the speaker disagreed that you had to wait until kids were "ready."- she said that with ASD kids you have to force it. I don't agree with her assessment. Once DS figured out the rules he totally "got it" and it was no big deal. He was even dry through the night from the beginning of our training (he had previously been wet every single morning- I had been told this was a sign that "he wasn't ready.") Bottom line, I think it's a psychological thing, they can either comprehend it or not. They stressed use of visuals, and DS being rule-driven I simply told him the rules, reminded him of them a million times a day (pee pee in the potty- not on the floor) and he figured it all out in a couple weeks. We also had the benefit of FT daycare that took him to the potty with the other kids every 30 minutes.
  • I don't expect her to be potty trained just yet, I just wanted to know other's parents advice & suggestions. Her ST recommended we start, but she's not even interested yet. I didn't know if there is a starting point & when should we start at start. (Even I'm confused by me now :D) I'm not trying to force her, or expect anything from her. I'm letting her be uniquely Imogen <3 

    My oldest was a breeze! But she's also not on the ASD, so it was different. I don't know how to approach potty training with Imogen because of her minimal communication. We want to look at daycare/childcare starting sometime this year, but we're still iffy because she is on the gluten free diet & most places (if not all here) won't allow you to bring food from home. Headstart might be different, but we decided to wait until she was 3 for that because she wouldn't be getting OT or ST any longer. 

    The diagnosis actually didn't upset me .. the waiting & wondering & the millions of "what ifs" did.  I actually was totally cool with it because no matter what she is still my cuppycakeface & now I know what to do to make her life happy. It's parenting.. you just take it all in stride, do whatcha gotta, & reinvent the wheel a few times. 

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  • imageNightmareMommy:

    I don't expect her to be potty trained just yet, I just wanted to know other's parents advice & suggestions. Her ST recommended we start, but she's not even interested yet. I didn't know if there is a starting point & when should we start at start. (Even I'm confused by me now :D) I'm not trying to force her, or expect anything from her. I'm letting her be uniquely Imogen <3 

    My oldest was a breeze! But she's also not on the ASD, so it was different. I don't know how to approach potty training with Imogen because of her minimal communication. We want to look at daycare/childcare starting sometime this year, but we're still iffy because she is on the gluten free diet & most places (if not all here) won't allow you to bring food from home. Headstart might be different, but we decided to wait until she was 3 for that because she wouldn't be getting OT or ST any longer. 

    The diagnosis actually didn't upset me .. the waiting & wondering & the millions of "what ifs" did.  I actually was totally cool with it because no matter what she is still my cuppycakeface & now I know what to do to make her life happy. It's parenting.. you just take it all in stride, do whatcha gotta, & reinvent the wheel a few times. 

    You sound like you've got the right attitude... this dx doesn't change who she is at all... it just hopefully gives you a little guidance to best help her succeed.

    Re: potty training... I'm not sure what the ST's motivation is in suggesting you start so soon... just-turned-two is young even by typical standards to potty train- and if she's not even giving you any signs, I'd think you're setting the both of you up for a lot of stress and frustration. DD just turned 4 this week, and we finally got her PT'd about 2 months ago. She still wasn't consistently telling me when she was soiled, but she had so many other skills she could tap into (listening, following rules/routines, responding to rewards, etc.)- skills she certainly didn't have at two. I'd be singing a different tune if she was giving you all these signs that she was ready to rock and roll on the potty training front, but that just doesn't seem to be the case. For now, just focus on all the new resources and stuff that you can introduce into her life to make her (and you!) happier and more successful.

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  • Her speech therapist suggested we get a potty seat to start getting her used to the potty & start training. I just didn't know if that would be a good idea or not because I have heard arguments on both sides of the issue & it's different with her because she's not "typical" so she rarely falls into any of the normal advice that I've been reading. I didn't know if I should start getting her comfortable with it now to help later on, or if things will just happen .. I'm in the dark, & I'm tripping over everything..
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  • My DS has speech delays (have appt. with dev. pedi in November) and I'm not starting potty training yet.  Even if his speech was typical, a lot of boys don't start this early. I'm waiting for more words/communication before starting.

    That being said, I do have a potty chair (Baby Bjorn) and DS likes to sit in it while I go to the bathroom. He even says "Poop!" whenever I sit down. LOL  So I think getting a potty is a good idea.

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  • I, too, have had lots of outside pressure to potty-train. My feeling is that with most kids, but particularly MY son, is that you can't force them to eat, sleep, or pee/poop. But you can put so much pressure on these areas that it bites you in the ass.

    That said, I'm getting awfully sick of changing his diapers. He's never peed or pooped in the potty. Not a single drop. And he has actually tried. I'm in the process of starting in-home parent training from the autism center and our trainer is great -- mother of 4, including a child with ASD, so I'm hopefully she'll help me find the right currency so that he will learn to do it.

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