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Orange County Babies
chelsealush
member
benefit for disabled child
chelsealush
member
Hi all! I live in Huntington Beach and have a 10 month old baby girl. She is my first! Zoe has OI, which stands for Osteogenesis Imperfecta. Which mean she has "brittle bones". She had 15 fractures while I was pregnant with her that we could count on ultrasound and has had 16 since shes been born, all being in the arms, legs, and spine. She has deformed bones since when they break we can not cast them (casts are too heavy for infants) and there for can not line them up correctly and have to let them heal naturally. As of right now I can handle paying her medical bills for her infusions, port-a-cath surgery and orthopedic appointments and xrays. What i'm having a hard time with is the wheelchair we have to order for her (takes 6 months and insurance covers 50%). I know it seems soon to get a wheelchair but she will not be walking and her Physical Therapist says that we should get one soon because normal 10 month olds are crawling and 18 month olds are walking. We dont want to hold her back from her independence and exploring, as she is cognitively on track. I am trying to get ideas and locations for either restaurants that will do a benefit dinner and give say, 10% or whatever amount of the proceeds for her or and ideas for benefiting medical bills. my email is Chelsealush@gmail.com if you have anything worth sending my way! Thank you guys 
mom to baby Zoe, DX Osteogenesis Imperfecta type 3, over 50 fractures since birth, 4 surgeries, uses a wheelchair, severe sleep apnea, mild hydrocephalus, beautiful blue eyes.
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Re: benefit for disabled child
check out the regional center. CHOC can hook you up w/ a social worker if you don't qualify for services from social services. Rainbow kids is in RSM and does therapy & advocacy for special needs. Call UCP in irvine, they might be able to hook you up w/ wc resources.
you can email me at mrsmex09 at g mail dot com if you need someone to talk to. good luck.
K+S 9.18.9 | DD #1 age 2 | PG # 5 EDD 9.17.12
this. if you qualify for services through the regional center, you can ask them about medi-cal through their waiver program (institutional deeming). IF you qualify for that (they don't look at your salary), then you can use your primary insurance AND medi-cal to help with medical bills. i def. know medi-cal will pay for a wheelchair. good luck!
BFP 3/9/12 Natural M/C 4/11/12