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May 2011 Moms
Does anyone else dislike doctors as much as I do?
I am so tired of doctors treating me like I am an idiot. I read a lot. I have a child with numerous medical problems and I am going to research those problems. So when I go to the doctor with worries that something is not right with my child, why is it so easily dismissed?
Newest case, Abigail is EBF but I have on occasion given her formula and EVERY time, within 3 hours she throws it up. I have used Enfamil Newborn and Soy and neither worked. I mentioned to my doctor and to the gastroenterologist and they both told me, "she probably just doesn't like it, she is use to breast milk." I understand this but, she is staying 2 nights with my parents while I am 7 hours away and I was worried that they would run out of frozen breast milk and then mom and dad would have to deal with her throwing up because she could not digest the "emergency" formula. Well yesterday, I finally decided to buy Nutramigen and gave her a bottle last night around 8 and SHE KEPT IT ALL DOWN!
I am so fed up! So far I have diagnosed her with :
1. Reflux
2. Largnomalacia (choking when she eats, wheezing and loud breathing because she was aspirating everything)
and I am still fighting with them over her eye problems .
Why do doctors just not listen to moms and take them seriously ?
This discussion has been closed.
Re: Does anyone else dislike doctors as much as I do?
Not at all to dismiss your concerns, but as to largnomalacia, the only cure is time unless you think it is so severe that she needs surgery. Reflux is largely the same, again, unless its so severe she needs medication. So what would you like the doctors to do with regard to your diagnoses?
Also, as far as the formula, if she is otherwise exclusively breastfed, it makes sense that she might have trouble digesting something new, regardless of what kind it is. So you either found one that was compatible enough with her stomach or she grew up enough to handle it. Again, what should the doctors have done?
I don't recall your situation with her eye problems, so I'm sorry you don't seem to be making the progress that you want.
With my field of work I deal with this situation as far as it relates to legal aftermath and sometimes I feel like there is a cycle. A patient/advocate gets upset that on one issue they aren't getting the answer they want and then it translates to feeling like they never get their concerns validated, while the doctors may dismiss a valid concern because it comes in the midst of the patient disregarding the answers they have given them. Its all in the communication. Try stating the question in a way that you have to get an "active" answer. For example, if you told the doctors that she throws up the formula, why? You got the answer, she may not like it. But if you said, I need to leave a back up food source for when I go out of town and she has so far thrown up x and y formula, what should I do? There is no answer to this question that doesn't give you a plan to try. Also, follow up with the doctor after you have taken their advice so that they know you didn't disregard their (if valid) advice.
Good luck.
The ENT said that Larngomalcia is tied in with the reflux. You must get the one under control to allow the other to heal. Yes they do usually grow out of both but when a child is not thriving, something has to be done. LO (after 11 weeks of arguing with my pedi) finally referred me to a GI who was concerned with her wheezing/ gasping/ choking and referred me to an ENT who, low and behold, found that she has been aspirating everything. Not just a "loud breather" as I had been told. She was also put on thicken for her milk and Prevacid and, like a miracle, it worked. After the ENT addressed my concerns, he has helped her. LO has been on reflux meds (zantac) since 2 weeks. When I tell the doctor that I do not feel that they are working then, I may be a silly first time mom, but I expect him to at least address the issue and not tell me that 1. He has never seen a child die from choking on its vomit. 2. She is probably really not throwing up that much. 3. She doesn't like formula so she makes herself throw it up 4. she is not aspirating, she is a loud breather... not really good answers as a medical professional.
I have been back and forth to Dallas and Little Rock Children's hospitals since LO was a few days old for numerous medical problems. I have dealt with many doctors. Some are great and I am amazed how others could have graduated medical school. I don't know if you are a doctor... or why you would even ask "What are the doctors to do with your diagnoses?" In my opinion, they are doctors and if I have a question about something in the medical field with concerns to my baby, they should address the issue and take it seriously. Not brush it aside. I should not have to go through 3 or 4 doctors to find out that my child is aspirating as I suspected, and asked about 10 weeks ago....yes, a doctor finally listened to me and yes, I was right. I could not medicate her myself so she had to suffer with it for 11 weeks. That makes me feel shitty as a mom because there was nothing I could do about it.