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Washington Babies
seattlestef
member
Hip Dysplasia
seattlestef
member
I thought I remembered someone on here having a LO with hip dysplasia. My newest baby was dx'd with it today and fitted for a Pavlik harness. Thankfully it seems to be a relatively mild case and we're hoping that 6 weeks in the harness will resolve it.
I'm just looking for any other experience with this! Would also love if there are any tips or tricks I should know regarding the harness.
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Re: Hip Dysplasia
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My oldest DD (13 now) was diagnosed with Hip Dysplasia at birth. She spent time in a Pavlick harness, Spica cast, and a Hip reduction brace. She hasn't had any problems since she finished her "treatment" around a year old.
If you have any specific questions of I can be of any help or support feel free to PM me.
Best of luck with your LO, I hope the Pavlik Harness works quickly for you guys.
Also this site might be helpful...
https://www.hipdysplasia.org/Infant-and-Child-Hip-Dysplasia/default.aspx
First, hugs. This can be scary and it is okay to be stressed about it. It is really a treatable condition and luckily, not painful. The first couple of days in the Pavlik were hard until we all got the swing of it. Then it was like it was nothing.
Second, email me at kaskade101 at yahoo anytime you want. My daughter K was diagnosed at 1 day, did several weeks in the Pavlik, then a Seattle Abduction Brace, and now we are out of the brace and looking at surgery in a couple of years. Sparkelz has been a huge resource for me along the way too.
Who are you seeing? I'm assuming you're going to Children's. I have some tips and thoughts as well.
My biggest tip is also to trust yourself on this. I had a bad feeling about the fit of K's brace for a while but let it go, and turns out I was right and the angle was incorrect. Follow your little one's lead and the time will fly by!
I just reread, you were looking for harness tricks. Here is what helped me:
Buy the softest, seamless socks you can for underneath. The best I found were actually at Fred Meyer. Anything with seams just bothered K's skin.
Buy cheap clearance leggings and chop off the tops. I used the legs like legwarmers, and put them over her calves. I was breastfeeding, and the velcro would scratch my chest and if I had a shirt on it would get snagged. The legwarmers covered the velcro and saved my skin and shirts.
Buy t-shirts with stretchy necks for underneath. I never liked onesies underneath, and also never had luck with buying size up pants for over the harness. It was easier to just put on socks that went high up her legs [buy size up] and a stretchy, soft tee.
Mess around with your carseat; we had to take the infant bottom insert out. I ended up going into 1800bucklup in Kirkland and they did a full eval on our seat with K in there to make sure the seat was working with her harness.
Be preemptive with the desitin, or whatever cream you want to use on her skin folds. K would get rashes under her knees if we didn't keep an eye on it.
I like this site: www.hip-baby.org
Thank you so much for the tips! I will probably send you an email soon - I feel like I don't even know what questions to ask yet since this was a surprise. She was actually born head down and on a whim I asked the pedi if she should get checked since she was breech for a lot of my pregnancy.
Her harness seems pretty soft and hasn't been snagging on anything so that's good. I cut off some little leggings to be leg warmers.
We are going to the Bellevue Children's Hospital. I'd love if you have any recc on doctors or if there is anything I should know.
Was K's dysplasia especially bad? I'm impressed they diagnosed it at one day! I'm just so thankful we did this scan and discovered it when its still early enough.
We go to the Seattle campus of Children's; we've seen Alphonso Flying-Cloud [for the majority of treatment, but we do not see him anymore], Cheryl Parker [best bedside manner!] and now we see Dr. Klane White, a surgeon.
When K was born her left leg dislocated completely when manipulated, and her right hip "clunked" but didn't come out as far, so they were able to diagnose on a physical exam and confirm with an ultrasound at about six weeks or so. That's when she went into the Pavlik.
I'm glad you guys caught it early, way to trust your instincts! It is such a treatable condition that I'm sure she's going to respond really well. Keep me posted and email anytime!