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Any lo's diagnosed with FPIES?

spideyswifeyspideyswifey
in Food Allergy

Hi!

My son has MSPI, we have known about it since he was 2 weeks old. He is ebf and I avoid all dairy and soy. He also has had problems with his bowels and has slight reflux. 

We have slowly began introducing solids, the experience has been HORRIBLE. He has had a very bad GI reaction to 2 of the 4 foods we have introduced. In both reactions he eats the food (oatmeal, peaches) and is fine until about 2 hours after. He then begins vomiting continously util he is only vomiting bile. After that he is starving and will take breast milk with no issues or reaction. I took him to the ER the first time and they diagnosed with a virus... right. I have been researching Gi issuesand came across FPIES. It sounds a lot like the reactions we have experienced. I finally got a referral from my pedi to see a pedi GI.

Anyones lo have this? How was it diagnosed? Have you been able to continue solids?

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Re: Any lo's diagnosed with FPIES?

  • magdusiamagdusia member

    I'm so sorry you're going through this.  I haven't heard of FPIES, but after reading the link it does sound like something your LO has.

    Glad you got a referral to GI and hopefully he can see your LO soon. In the mean time i wouldn't introduce anything new.. 

    Hope you get some good news and good luck at the GI

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  • spideyswifeyspideyswifey

    Thanks for your reply :)
    Your baby boy is just precious!

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  • funchickenfunchicken member
    I think someone posted about this a while back.  If you scroll through the posts, you might be able to find it.
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  • funchickenfunchicken member

    Here's one:

    https://community.thebump.com/cs/ks/forums/thread/55474164.aspx

    So there are at least a couple of people on the board whose LOs have this.  I'm pretty sure there was an earlier post about it, too.

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  • melknee78melknee78 member
    Yes, my LO has it and I am sorry that you and your LO is going through this.  FPIES is a diagnosis that is given after other things are ruled out.  More than likely the GI is going to want to do an endoscopy and I would do it.  The reason this is done is because they want to check and make sure it is not celiacs or another issue.  More than likely they will also want to do allergy testing to rule out an IgE allergy.  
    Another issue is that FPIES is not a very common diagnosis and I actually had never heard of it until my DD was 17 months old and it seems to be pretty common for ER's not to know about it.  We went through almost a year of issues before an allergist diagnosed her.  How is your LO's weight?  How is he doing on his growth curve?  How old is he?  Feel free to PM me if you want more information.  
    Also there is a group on FB that I belong to just type in Food Protein Induced Enterocolitis.  Also on baby center their is a group dedicated to FPIES that has been helpful.
    My DD was diagnosed as Failure to Thrive at 9 months, at 1 year the GI said she had a milk protein allergy and at 17 months we got the official FPIES diagnosis.  She is off of all dairy and recently had to change formula's due to hidden dairy in the one she had been on for 6 months.  Luckily for us, she has not had any reactions to any other foods but the foods you mentioned have been listed by others as reactive foods. 
    Good luck in this possible venture. 
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