- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Parenting after 35
robynlesley
member
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
Lots going on here
robynlesley
member
The short short version is as follows:
1) DS is behind in speech and language, social/emotional and cognitive abilities (behind in other areas too) and qualifies for Early Intervention. The process is slowly moving along and I have meetings this Friday and next Thursday. It will be another 3-4 weeks before therapies begin (not sure what kinds yet, will find out at our IFSP meeting on the 28th).
2) Because of all the delays, he's having a hearing test on the 29th.
3) He also started "school" (ie. daycare for 2.5 hours 3 days/week). It's NOT going well. He's never been away from me, so the transition is rough. And he throws INSANE temper tantrums if he doesn't get his way/is upset.
4) That leads me to #4... I'm having him evaluated (in the next few months, on a wait list) by a developmental pediatrician to see what's going on. I'm worried re: Autism but hopeful it's just due to his delays.
5) And perhaps due to all the stress in my life (money woes at the forefront) I broke out in hives last Monday. Saw an allergist yesterday and he feels it's probably environmental (as prior bouts of stress never produced them) but isn't ruling it out. Will have allergy testing next month.
On the good points, Aaron does say individual words so the basis for speech is there. And his evaluators felt he is very intelligent but stubborn. So hopefully OT/speech therapy/whatever therapy they recommend will do the trick. The OT who evaluated him said we should see a different child in 6 months. I hope so. Not his personality, which is so happy and sweet, but behaviorally.
That is all. A lot. Not as short-short as I thought. But wanted to update. I'm not feeling like posting a lot because seeing how well others' kids are doing makes me sad that mine isn't where he should be.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
This discussion has been closed.
Re: Lots going on here
My Blog
DD -- 5YO
DS -- 3YO
Oh my gosh...that is definitely a lot at once! Even though it may seem overwhelming right now, you're taking it one step at a time and that's the best thing you can do. It sounds like little Aaron is going to get the evaluations he needs to get him back on track. Sometimes little ones just move at their own pace and that's okay.
I hope you're feeling better with your hives too!
P.S. - I sent you a PM the other day!
?????????
Robyn, we are all thinking about you and keeping fingers crossed that things get all caught up.
Yes, it is a lot. On the positive side, they have a good Early Intervention program here in NJ and it's free. All my frinds' kids who were/are in the program are perfectly fine now that they are 4 or 5 y.o. Those who had speech delay don't have it anymore.
Speaking of day care, it took J a few months to adjust, so I am sure the rough transition is only temporay.
J still throws tantrums every time he doesn't get his way and/or is just plain tired - practically every day. We don't consider this a big problem since he is developmentally ok and hits all the targets on time. Our pedi tells us that if we are concerned abut his tantrums we should get therapy ourselves and learn how to deal with his tantrums. She thinks therapy will not work with J at this point.
This is a common misconception re: NJ Early Intervention. It is only free if you don't make over XX amount per year. (For a family of 3 in 2011, you have to make $56K or less for it to be free.) The cost is then determined on a sliding scale based upon your W2s and combined income (2010 tax records). I haven't had my financial meeting yet so I'm not sure what part I'll have to pay. And there is an out-of-pocket max. per month.
But it's always good to hear that others have done well after EI. I hear that a lot on the NJ Nest board.
I'm still concerned re: the tantrums and hope his adjustment to school gets easier. I am glad they are willing to work with him since I know if one child is too disruptive they cannot keep accommodating the one. But hopefully it won't come to that.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
Good luck in the next few weeks, meetings and appointments can be super stressful. In early intervention, you are an important part of the team. They may be experts in their field, but you are the expert about your child. I think some teams make parents feel like they are unimportant, and that should never be the case.
(Sorry if this doesn't make sense. There is a diaperless toddler sitting on my foot, so I am a bit distracted)
Thanks, all.
And yeah, they're hives. But I know Shingles can be a concern. They're fading, thankfully, after several days of antihistamines.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
So as quick update. As of this morning (day 11) my hives are gone.
And I had my 1st meeting with EI to go over the program as a whole and our cost participation. It will be $3 per hourly session and an OOP max per month of $200 (though to get there, DS would need 66 hours per month, which is very unlikely. My monthly cost will most likely range from $12 - 30/month. Thankfully DH has his health insurance and FSA accounts taken out pre-tax, so they're not on his W2.
Bronx Zoo: Summer 2013
To read my blog, click on the giraffe pic below!
Oh Robyn, first off huge hugs being sent your way! I know I haven't posted here in a long time but I could have written your post. My daughter Kaylee is the one who had seizures at the age of 6 days old and has been on phenobarbitol since then. She is now 25 months and also has a speech delay and has some physical issues (nothing major, inturned foot that only shows up when she is tired, weaker on her left side than right but fully functional). At this point she can only say hi, moo and woof.
She was evaluated for EI and it took almost two months to get anything going with the therapist. She now has been in speech therapy for 6 months and just started physical therapy a month ago. At least here in Illinois with EI they bill insurance first and then the state takes over and I have a $30 co-pay monthly for as many services as Kaylee needs. We are also actively weaning her off the phenobarbitol as her neurologist thinks she is ready as she has been seizure free since she left Children's Memorial Hospital.
She has not been very productive with speech therapy but I am finally starting to see a difference now that she is almost weaned from the meds. Sadly she is now noise phobic and freaks out at normal sounds (vacuum cleaner, electric carving knife, airplanes, loud cars driving by). The docs think it is either she no longer has her senses dulled by the meds or it is her age where fears and phobias can kick in.
I also think it is great that you are getting Aaron tested early and if they do find he qualifies for services he will get them started early. Everyone has told me that kids do well with EI.
Anyway, I didn't mean to turn this post into my story, I just wanted to let you know that I can relate to what is going on with you and Aaron and if you ever wanted to talk I am here. I also feel funny posting about Kaylee (hence why I haven't posted in a long time) since she has so much going on.
Let us know how Aaron is doing.
Dawn