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Peyton is in surgery

realisticdreamsrealisticdreams member
in Special Needs
they took her back at 7:30.  Gave her something red to deink which she almost puked up a couple of times.  This sucks it's one of the hardest things I've ever had to do. Signing a paper that says coma and death isn't ideal with a 20 month old.  I just hope everything goes as smoothly as possible.
DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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Re: Peyton is in surgery

  • ToastieSimonsToastieSimons member
    You and your family are in my t&p.  Stay strong mama!
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
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  • Katrina_0087Katrina_0087
    Sending good vibes your way. Stay strong.
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  • Florak8Florak8
    Praying for you guys. :)
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  • MummyGruetzieMummyGruetzie member
    Thinking of you guys and wishing sweet Peyton a quick and smooth recovery.
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  • robynlesleyrobynlesley member
    You and your daughter are in my thoughts and prayers. Hope everything goes smoothly.
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  • MbitnerMbitner
    T&Ps!!!
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  • MaxandRubyMaxandRuby member
    Your family is in my T&P. Hoping for a quick and smooth recovery for Peyton!
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  • realisticdreamsrealisticdreams member

    Don't have a whole lot of time, just wanted to pop in & say that everything seems to have gone well.  She didn't have any reflexes/responses so I was kind of worried but once her ativan wore off they seemed to be semi-normal.  We are having to lay in the crib with her to keep her down.  

    They didn't listen to me & didn't have anything ready to calm her down with so apparently she was sitting/standing right after surgery.   

    Things that have irked me:

    -the people in the hospitality hotel who think i'm supposed to know whats there food vs donated food when they don't mark their *** or clean up after themselves (i'm talking FIVE dirty old pots/pans on the stove!).  People who 'break rules' annoy me. They weren't even supposed to be in the pediatric kitchen!  They were pissed Peyton took an icepop yesterday, seriously.  

    -the receptionist at the peri-surgical unit thinking i'm going to wait 30 more minutes for a room # when the surgeon told me where they were taking my kid & to be there.

    -the nurses who didn't assume she would need morphine right away...i'm fairly certain she's in pain what with the giant opening down her back & all.  

    I am fairly surprised at the length of her incision, it's not as long as we originally thought it would be.  I keep getting lost in the hospital & I never knew just how far a 4 block walk was!

    I guess that's all for now..Thanks for your prayers.  

    (I assume we won't know bladder/bowel wise hows she's doing for a little while, she hasn't peed since surgery was over, but they said she did pee during) 

     

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • lite-brightlite-bright member

    I hope that everything goes very, very smoothly and well, and that she's back in your arms soon!

    Keep us updated! 

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    DD1, 1/5/2008 ~~~ DD2, 3/17/2010
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