- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Preemies
V had ROP Surgery Yesterday.
So last week we were told V had stage 1 ROP. We were not surprised since she was on 100% oxygen for almost two days after her PDA ligation, has been on some type of oxygen in her short little life and was just so small. Well it progressed from stage 1 last Wednesday to stage 3 yesterday. She had a ret-cam done the day before and the nurse said her vessels in her eyes were 'angry' and showed me the pics and then showed me the dreaded ridges that goes along with ROP so, like I said, we were not surprised. The eye Dr did the surgery about an hour after he examined her.
She did well during and after the surgery (which started about 4pm yesterday and ended about 5:30pm) and as of 5am today she was doing well still. We are hoping she will be off the vent some time today.
When the eye Dr told me I started crying because my peanut has been through so much in her short life and we almost lost her after her last surgery....she's due for some good things. So I figure the eye Dr was thinking 'this *** is crazy it's a simple surgery'....kidding, sort of, I do think he was surprised by my reaction although once we explained our concerns with her post surgical history he seemed more understanding. The good thing was that the Neo that was there for her ligation post surgery nonsense was there for this surgery and she assured us she had back up meds to use in case she starts 'her antics' again. LOL, I love the Neos in the NICU.
So hopefully this did the trick. We were told that there's a 10-20% chance it won't work, she might have to have another surgery, and/or she could still go blind but the alternative is that 100% she will go blind without the surgery. He also said, most commonly, she will have peripheral vision loss.
So, if you will, keep V in your thoughts, hope that her recovery is easy and she doesn't have to go through any other crap (like, for the rest of her life) and just gets better from here on out.
Oh and my husband was pissed when we found out she was stage 1 ROP which is a longish story but it has to do with oxygen and high satting at 100.
This discussion has been closed.
Re: V had ROP Surgery Yesterday.
BFP #3 via cancelled IUI ~ C (2lb 3oz; HELLP) 5/16/11
BFP #4 via the natural (free!) way ~ E (8lb 11oz) 9/13/12
I hope her recovery goes well. DS had ROP surgery too and is doing great now. We went for a 6 month checkup in May, and don't have to go back until Nov. He probably has some perf. vision loss, but he'll never know any better.
Lots of positive vibes coming V's way!
Oh my goodness!! Your poor LO. Sending T&Ps your way.
And regarding your husband, I have a feeling ours were pissed about the same things. Emiy's ROP hasn't progressed past Stage 2 yet but he definitely has some things to say about her getting that far. We are both all about googling stuff and what he found set him off.
I hope this is your last big obstacle for little V.
I hope the surgery fixed it and she's clear of ROP and possible blindness and peripheral vision loss. It sounds like the NICU wasn't keeping an eye on her satts and she was sitting in the high 90's or at 100 for awhile - that'll do it (at least from what I was told in the NICU). If so, that totally blows since it could have been prevented. I'm so sorry that you were all put through this situation. Fingers crossed that there are no more issues with her eyes!
We'll miss you sweet Debbie Girl (4.21.12) and sweet Cindy Girl (8.9.12)
I'm so sorry V had to have surgery--and so quickly that you didn't have much notice! It sounds like she is recovering much better this time but I know you must be scared anyway. Hopefully she will be off the vent by the time you read all these replies and this will be her last hurdle.
She is an amazing strong little lady (and so is her mother!)
Our precious girl, born at 27 weeks.
Didn't mean to imply that she didn't need to be receiving 100% O2; I was talking about the saturation level. I really hope this is the last of her complications. Have you addressed the lazy nurse issue with the NICU? Her statement is unacceptable.
My husband addressed it with a charge nurse who sent a memo to the nurses, he mentioned to the nurse practionar (the same day) who was not at all happy about It and did/said something but I never asked what. Finally, last week we told one of our favorite Neos (who has a soft spot for V) and she raised holy hell. Since then her alarms have set to alarm when she is sating high. My husband and I are watching like a hawk and if we see her sat 98 to 100 and no alarm we will speak up.
Oh no! I was not being clear so I just figured it read poorly - like I was implying she didn't need the O2 at 100%. I'm glad they're taking the alarms seriously now.