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December 2011 Moms
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Neural Tube Defects results

stacyandjay22stacyandjay22
in December 2011 Moms

Hey, I got a call from my doctor today saying that my blood work showed that I am at a higher risk of my baby having a neural tube defect such as spinal bifida. We have an ultrasound Monday that will tell us if there is anything wrong or not.

I was wondering if any of you got these results and then learned that everything was fine. I think it's going to be a very long weekend filled with a lot of praying...

Thanks in advance.

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Re: Neural Tube Defects results

  • ladykatie81ladykatie81 member
    Thoughts and prayers being sent your way...
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  • mrs JT09mrs JT09

    Sending thoughts and prayers to you and your LO.... 

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  • emd2887emd2887
    I don't have any advice, just wanted to add that lots of thoughts and prayers are being sent your way for a healthy baby. 
    BFP#1=12/24/10 missed m/c @ 9w2d BFP#2=4/13/11 EDD 12/24/11 (coming full circle!)
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  • stephers_7stephers_7 member
    Was this done during a blood test? If so, I JUST read today (I believe on the bump) that a lot of women are told they have a high risk of whatever they are screening for in a quad screen but 90% of them never have babies born with any sort of defect. If I can find that link I will send it to you because I think it will ease your mind. 
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  • stacyandjay22stacyandjay22

    Thanks so much for the prayers ladies.

    Yea, it was just the blood work. Hearing that there is a 90% chance that everything is ok makes me feel better. Thanks!

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  • stephers_7stephers_7 member
    I'm still trying to find that link! I just get so many baby emails sent to my phone everyday I don't remember which website it came from. 
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  • stephers_7stephers_7 member
     I Couldn't get the link to work so I just copied and pasted the section where it talks about the blood tests. Hope this helps put your mind to ease until you truly know for sure!  This very common procedure checks your blood (not your baby's) for specific protein and hormone levels and any potential genetic issues. Before you start breathing in that strained fearful way or furrowing your brow in concern, you should know that even if you do get a positive test this hardly means your little trooper is in trouble.In reality, only about 3 to 5 percent of women yield positive results, and of those women, only 10 percent actually have any sort of complication to report.In other words, 90% of the women who get positive results from the MMT are getting false positives.Big Picture: The MMT helps 10% of women start to deal with the scary reality that something isn't normal about their pregnancy, while causing a crap-ton of undue stress for 90% of the women.Obviously, a positive test from the MMT will have the doctor recommending further testing, including the much-scarier very-invasive amniocentesis (sticking a massive needle into your womb) and more ultrasounds.Remember: this is your pregnancy. You make the choices here. If you don't want to go through the undue stress of taking this test, you can opt out. That's your right.Still, you should weigh the risks carefully. The blood test doesidentify neural tube defects and Down Syndrome when it's not being wrong (which it almost always is).For women over the age of 35, doctors will highly recommend this test, as Down Syndrome is more common in babies born to women over the age of 35, and 10% more common in women over the age of 40.To sum it up: the MMT is a simple blood test that has 90% false positives, which causes serious-but-undue stress in millions of young women, while it also informs a minority of women about the status of unexpected and serious issues.Your pregnancy, your choice.
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  • stacyandjay22stacyandjay22
    Thank you so much! That was comforting to read!
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  • BookwormyoneBookwormyone member
    I am in the same boat.  I found out on Tuesday that our risk is 1/120.  It's not "high" but it's higher than usual.  I have an ultrasound on Wednesday.  The doctor told me that most of the time it's due to a false positive on the test and that they're fairly common.  Of course, it's still hard not to worry at all.  My T&Ps will be with you and please update us on Monday. 
    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Pregnancy"><img src="http://global.thebump.com/tickers/tt1d1425" alt=" BabyFruit Ticker" border="0"  /></a>
    DD1: November 2011
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  • stacyandjay22stacyandjay22
    I will. My thoughts and prayers are with you too!
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  • heatheranddanny60509heatheranddanny60509
    Thoughts and prayers
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  • skleidon21skleidon21 member
    Sending thoughts and prayers...
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  • Lexie MarieLexie Marie member
    Def in my thoughts and prayers! Best wishes for the u/s and keep us updated! Good luck dear!
    Liam Tyler & Emma Grace 
    ...baby #3 boy MC at 10 weeks


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  • flowersarah79flowersarah79

    Hi, I just got the exact same call last week! My AFP levels were high, which could be an indicator of an NT defect such as Spina Bifida (among other things).  Needless to say I was totally freaked out and started doing lots of research online.  The predominant thing I found is that this test does result in many false positives.  The statistic is something like 50 out of 1000 women have the results come back 'high', and of those 50 women only 1 has a baby that actually has an NT defect.

     Anyhow I had to wait until yesterday morning for my level II u/s (7 grueling days of worry!) and the u/s showed a completely normal healthy baby GIRL with a perfect spinal cord, head, abdomen, everything!  So the doctor said that this was just a case of a false positive.  She did say that we could get an amnio to confirm that all is well, but those have a risk of miscarriage so I opted against it.

    To me, pregnancy is a real leap of faith, no one really knows what health problems the baby will have until it is born- I just have faith that all will be well!

    You are in my thoughts, I'm guessing everything is normal :-)

    BFP 11/4/10, missed MC 12/22/10 BFP 4/12/11- DD 12/20/11!! BabyFruit Ticker BabyName Ticker
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  • 06hoky06hoky member
    T&P for you, YH, and your LO!
    image Started TTC 11/07 BFP 09/24/08 Miscarriage 09/30/08 First cycle of clomid August 09 Second cycle of clomid September 09 BFP 09/30/09 Miscarriage 10/10/09 Three more rounds of clomid and no success Diagnosed with Unexplained Infertility Abnormal Bleeding for 3 months resulted in D&C but results were normal November 2010 100mg clomid but didn't respond December 2010 forced break for a cyst February 2011 150mg clomid but still no response March 2011 250mg clomid and responded! Ovidrel trigger shot and IUI on March 31 Beta #1 11dpo: 27 Beta #2 15dpo: 85 Beta #3 18dpo 276 Lilypie First Birthday tickers
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