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MSPI Regrets

faith194faith194
in Food Allergy

As a few new mommies post their wonderful, amazing experiences with breastfeeding. . .I'm feeling jealous. I am not a jealous person, nor do I wish anyone to have difficulties with breastfeeding.  It is a strange feeling.

Anyway, DS had major latch issues for two weeks, and we needed to supplement due to supply issues(I was an awful pumper, and my supply suffered because he didn't latch for two weeks).

At 5 weeks, our pedi told me to cut dairy due to painful gas, blood in stool, and diaper rash.  He was also put on Nutramigen.

At 10 weeks, we were referred go a Pedi GI, when his symptoms weren't getting better.  I was so proud of only giving him 4 ounces of formula a day at that point.

He was diagnosed with MSPI. I was told to cut out all soy and dairy, and pump for two weeks while giving him Elecare.  His symptoms cleared within 24 hours. Two weeks later, I reintroduced breastfeeding once a day for two days, and his painful gas came back.  I was miserable trying to figure out what I could eat.  I was miserable when I cut out all soy and dairy and he was still reacting(remember, I had been on a dairy free diet for 7 weeks at that point, and soy free for 2).

 We made they decision to go to Elecare exclusively. DS has thrived on it. I'm sad I didn't do all I could to breastfeed. I mean, I could have lived off of veggies and chicken for 8 more months, right?  I could have done more research, but I felt like I had done quite a bit.

 Does anyone know how I'm feeling?  I hate being jealous of other women and their success with breastfeeding, because that is so not like me.  Formula is not evil, and DS thrives on it. I hate explaining to people why DS isn't breastfed(it comes up more than I ever thought it would). 

 

Thanks for reading if you got this far. 

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Re: MSPI Regrets

  • ohiorootsohioroots member

    This is us almost exactly! Only, my pedi, GI specialist and allergist didn't take my concerns seriously. As a last resort I put her on similac sensitive when she was 5 months old, and within 24 hours she was a brand new, happy, non-screaming baby.

    I cried the day we decided to go all-formula. I cried the day my milk dried up. I cried a month after my milk dried up because I saw a mom at the mall BF'ing her baby.

    I'm so happy we did it, and now I don't cry at the thought anymore, but I wish we could've breastfed longer

     

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  • FrumiousBandersnatchFrumiousBandersnatch
    I feel like you were talking about me.  I quit breastfeeding last night.  I fought with this decision for a month.  We cut dairy at 3 weeks.  He turned into a different baby- happy, not screaming all the time.  It was bliss!  There were still rashes and fussy periods, so we went to a GI specialist and cut soy.  We also started Prevacid.  Everything was going okay.  Then, I went back to work and pumping wasn't going as well as I had hoped.  We had to supplement with an elemental formula- Nutramigen AA.  A couple of days ago, I ordered off the soy and dairy free menu (online) at Applebee's.  Well, he broke out into a full body rash after breastfeeding.  I tried formula for a day while the rash cleared and he HATED it.  He fussed and refused it, etc.  Then, last night he screamed all night like before we cut dairy.  I have no idea what caused it.  I was done.  I promised him I'd never do it to him again.  We have used Neocate all day today with no problems.  Don't feel guilty.  Food allergy babies have their own challenges and we have to face them as they come with the best resources we can muster. 
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  • melknee78melknee78 member
    I feel the same way in regards to my 17 month old who has milk protein allergy. At her 9 month appointment she was diagnosed as failure to thrive and I was told to supplement. It was never mentioned to change my diet and since she was never fussy like I see other babies are, it never dawned on me that dairy could be the problem. By 10 months, she was full time on formula (I was 2 months pregnant and my body failed me. When she turned 1, I cried because I had not made it that long like I had wanted to.
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