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Anyone read Managing your Child's Life Threatening Food Allergies?

TheBubTheBub member
in Food Allergy

I am about half way through and a little confused.  Do you go to the extremes that the author recommends?  I don't and DS has never had a reaction other than the initial ones that prompted the testing.  Am I tempting fate?

Also, I am having doubts about his initial testing results.  He have an appointment to see a new allergist on Monday.  The first one made his condition seem very serious, but we only left the office with an epipen and a pamphlet for a website to get more info.  She also gave us a year's supply of Nasonex to prevent recurring ear infections, but he has only ever had one and it just happened to be at the same time of his allergist appointment.  I explained that to her and she insisted that he needed it twice everyday.  No, we hadn't tested for any environmental allergies either.


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Re: Anyone read Managing your Child's Life Threatening Food Allergies?

  • luvmagoldnluvmagoldn
    I have not read this one.  Can you give us examples of some of the measures that seem extreme to you?
    image

    My twins are 5! My baby is 3!

    DS#2 - Allergic to Cashew, Pistachio, Kiwi

    DS#3 - Allergic to Milk, Egg, Peanut, Tree Nuts and Sesame

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  • magdusiamagdusia member

    your allergist gave you a years supply for medicine for an ear infection?  does she expect you to be a doctor? you should always see a real doctor every time your child has an ear infection and not determine this yourself.  Especially since your LO has had it only once. that's very weird to me.

    I did not read the book. I did not read any books at all about allergies. i just did the internet thing. i was on kidswithfoodallergies.org (or com) every day. I joined a few yahoo groups which has great support.

    Also, regarding doubting your results.. " The first one made his condition seem very serious, but we only left the office with an epipen" leaving the office with an epipen is serious stuff.  It sounds like your childs allergies are serious and you should treat them as such. Avoid foods that your child is allergic to.

    what was your child tested positive for?

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  • TheBubTheBub member

    She gave us a year's supply of Nasonex, which is a nasal spray.  She insisted that we needed to prevent the ear infections by keeping his sinuses from draining into them.  She did not give us a year's worth of antibiotic.  However, she did give a super old school antibiotic that took two days to get in the pharmacy and then was a ten day course.

    Regarding the doctor not giving us much info...DS is allergic to peanuts, tree nuts, chicken, and eggs. He was not tested for seasonal allergies, however, I do believe he has some.  There are several reasons why I am unhappy with this particular doctor.  The book I'm reading talks about egg allergies that mean the child cannot eat eggs in anything.  Our doctor only said not to let him have raw egg whites, so we should only avoid breakfast eggs for fear of them being undercooked.

    Recently DS got a very bad diaper rash that would not go away.  Finally I realized that the new wipes I bought on sale had shea butter in them.  When I called the allergist's office to ask if shea butter was made from a nut, the reception only said that I needed to call the company.  Why do we see a doctor if the office is never able to help us?  When I was finally able to Google it, I found out that it is indeed made from a nut.

    This book also goes into a lot of detail about having a rescue kit, how to use an Epipen, and calling maunfacturers for detailed ingredient lists.  Shouldn't these be some of the things the doctor's office should have gone through with us?

    I'm not an idiot or neglectful.  This why we are getting a second opinion.  I just want my child to have as normal a life as possible and if a little more information about HIS particular allergies could do that, then I want it.  I dont want to keep him in a bubble if I don't have to.  I could read all of the books and websites out there, but nothing will be specific to his needs.


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  • luvmagoldnluvmagoldn
    imageTheBub:

    This book also goes into a lot of detail about having a rescue kit, how to use an Epipen, and calling maunfacturers for detailed ingredient lists.  Shouldn't these be some of the things the doctor's office should have gone through with us?

    Our allergist gave us a DVD to watch about the epi, told us to keep it with him at all times in addition to Benadryl.  I got print outs detailing the different things to look out for in ingredient lists.  If I have questions about whether something is not safe for DS (like sodium lactylate for example) I look it up on Google or the FAAN website. 

    As for calling manufacturers, I haven't really done that yet.  I've emailed the corporate offices of restaurants and theme parks regarding their food policies, ingredient lists, etc.  But I haven't had the need - yet - to contact a manufacturer directly.

    I would definitely switch allergists.  You need someone better able to support you and your family as you navigate all this!

    image

    My twins are 5! My baby is 3!

    DS#2 - Allergic to Cashew, Pistachio, Kiwi

    DS#3 - Allergic to Milk, Egg, Peanut, Tree Nuts and Sesame

    Report Reply
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