Edmund update

Ciaram22 · June 2011

Today he got his NAM (nasal alveolar molding) put in. His lip is all taped up and has this big retainer like thing in his mouth. He has to wear this for the next 12 to 16 weeks and its to help promote the palate to move and the gap in the palate grow closer together. This should make his lip repair surgery in September go a little more smoothly and have less of a scar. On the plus side he is now over 10 pounds and is 22 inches long. All the doctors are pleased with his weight gain.

LauraLynneC · June 2011

sounds like you - and his doctors - are really proactive about all of this, great job mama! (I know it probably seems like common sense to you but you'd be surprised!).

Does he have to wear the 'retainer' all day - how will he eat? As well as he's growing, it doesn't sound like it's going to be a problem though!

Nancy_Drew · June 2011

Poor little guy! Do you have to remove it to feed him?

Great news on his weight gain! Good job mamma!

He still is such a cutie and it doesn't look like it's bothering him to much. Love how bright eyed he is.

Ciaram22 · June 2011

He has to wear it all the time. Unless it gives him a sore and then we are to take it out for half a day and then put it back in once we can get into Children's so they know where the sore is and fix it. He seems to be eating fine with it in so far. We have to take it out 2-3 times a day to clean it.

keri1013 · June 2011

I'm glad they are moving forward with a plan, sounds like things are going well so far!

dawnies79 · June 2011

I was thinking about you and Edmund the other day. I'm happy to hear he is doing well and growing. It must be nice to have a plan and be moving forward. How are you doing? I can imagine it's a lot to deal with. You seem to be very positive which is wonderful.

skenyon · June 2011

I'm so glad to hear is gaining. The son of a girl I grew up with just had his palette reconstruction surgery at Childrens last week and she said they are just amazing there.

MOHjen · June 2011

It sounds like you and your doctors have a great plan. That is so great about his weight gain too. Great job Mama! I'm glad the NAM doesn't seem to be bothering him. What a sweet and good natured boy (not to mention cute!)

FutureFung · June 2011

So glad to hear he is doing well! Lots of good thoughts that all the pre-surgical steps go well so that his surgery is as smooth as possible.

Zista · June 2011

Go, Edmund, go! I'm hoping things go smoothly. Keep us posted.

m&m823 · June 2011

He is just such a beautiful boy! And so brave. Thanks for the update - I think of you guys often!

MrsKatie · June 2011

First off, he is so dang cute! He looks so alert for his young age!

It sounds like you are doing a fabulous job at being a Mama! I'll keep thinking of you guys. I'm so happy to hear he is doing well.

massagegirly · June 2011

Wow, you are really positive, great job.

doublem · June 2011

Wow - he looks like he is so chill with the whole situation. Good job, mama! Isn't it fun to see how bright-eyed and healthy he is? It's good to hear that you and the doctors have a plan and are following it!

kaskade · June 2011

Sounds like good news, especially the weight gain! Great job mama! It is so hard to see your little one go through medical procedures and deal with the interventions, but babies are so resilient. You are doing awesome and while it doesn't feel like it, the time will move quickly and someday this will be a memory.

And, oh my gosh, he has amazing big eyes!