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Any visually impaired children?

SaucySarieSaucySarie member
in Special Needs

I had a question for anyone who has a DC that either cannot see at all, or sees very little.

    My middle baby, Ayva, has CVI and it is pretty much like she is blind at this point (other than lighted, moving objects).  Lately, she has been having trouble sleeping in her crib.  I am wondering if maybe she wakes up and gets scared b/c she can't see and feels alone???  She sleeps great when she is in the bed with me- but wakes up constantly when she is in her own bed.  Does anyone else's visually impaired child get scared when you are not around and can't see/find you?  Or does anyone have any ideas as to why she cries in her bed so much.  (oh, and it's not like a "I don't want to be in my bed anymore come and get me" cry   it's a freaking out, screaming bloody murder cry.)   I am just so sad to think that she is crying b/c she thinks I've left her and she is all alone :(

thanks!

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Re: Any visually impaired children?

  • amajaneamajane member
    I know ronnieday has a visually impaired DD. I don't know if she still checks this board but she is on 0-6 occasionally.
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  • Erin Mary AckermanErin Mary Ackerman member

    yup, page ronnie day..but watch out the cuteness that is Lucy is overwhelming!!

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  • akimboakimbo
    DS has some BIG visual/spatial problems resulting from his Dx.  I wish I had more to offer than to tell you that your local Early Intervention office may be able to provide you with a vision specialist.  His special ed teacher is a vision specialist and works with kids ranging from completely blind to impaired.  GL.
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  • SaucySarieSaucySarie member
    she has a Special Instructor who helps with her vision, but I was just curious...  Thanks
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  • preemiemompreemiemom
    My daughter has ROP, a cataract, and a lazy eye, all due to her prematurity. What you are describing sounds normal some children. My non-impaired child screamed in bed much more than her sister. She may just love being with people, or maybe she is teething.
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  • SJC1984SJC1984
    My son is visually impaired due to a brain tumor on his optic nerves.  He does sleep with me and we had a lot of trouble with sleeping until just recently.  I don't think my son's is due to the fact that he can't see (sometimes he naps with his glasses on), it's just that he hates being alone and would rather sleep with me!
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