Cincinnati Babies

I had a refresher course in humility and compassion today

Today friends of ours learned their baby has Dandy Walker malformation. Mom is 22 weeks into her first pregnancy. This syndrome has different degrees of severity and different degrees of associated problems and this particular case appears to be quite involved. There is a significant list of brain malformation present on ultrasound. The doctors are not optimistic about the baby's chance of survival after birth. 

I spent a day here frustrated with the demands of two healthy children. Meanwhile this couple endures pain I can't even fathom and mourns the dream of the healthy child they believed would be theirs. Sadly, the phone call telling me this was a much needed reminder to hold my children close and be grateful for the blessings that have been given me. I know none of us know the answers but I struggle to understand why these things happen.  

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Re: I had a refresher course in humility and compassion today

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  • I hate that it takes things like this to remind me to appreciate my increasingly needy, slightly bratty, yet healthy baby. I feel like there have been a lot of sad reminders lately. I'm so sorry that your friends got such painful news today.
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  • I'm so sorry your friends got such horrible news.
    6/28/10: Lost our sweet baby Addyston at 18wk 1day to pPROM 7/24/11: Michael William born at 24wk 2d due to IC after an emergent cerclage at 18wks, 4wk home BR and 2 weeks hospital BR. Grow strong our little Miracle! 9/17/11: Michael joined his sister in heaven after 8 amazing weeks with us on earth. He fought a very hard fight but NEC was too much for him in the end. Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers Lilypie Pregnancy tickers
  • Oh, my heart goes out to them.  I can't imagine the heartache.

    And thanks for the reminder to be thankful for all that I have.

    Justin Thomas joined us on 8.4.07
    Tyler Anthony arrived on 9.21.09
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  • Hopefully they don't hear the "everything happens for a reason" for quite a while (or at all).  It's hard to take when you're in the middle of it.

    Your friends and their sweet baby will be in my prayers.  I can't imagine dealing with news like that; I hope by some miracle the problems aren't as severe as they've been told.

    Brady 7/29/2009 Avery 4/1/2011
  • I'm so sorry to hear about that for your friends. What you said is so true.
  • Oh, how heartbreaking.  I'm so sorry for your friend.  I'd like to write more, but it's early and I don't feel I have the ability to convey what I'm thinking into the typed word.

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  • I am so sorry to hear of your friends' news.  I will keep them in my prayers.  I agree that it is quite the reminder to be thankful for what we have. 
    Married 12.27.03
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  • Very sad.  I will keep them all in my prayers.  (Hugs)
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  • I agree completely.

    Of all the blessings I've received, I realize having healthy babies is at the top of the list. Watching those around me who struggle with their young children's health has opened my eyes to this. My heart goes out to your friends as they go through this.

  • I can't even fathom what they are going through.  They will be in my prayers.
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