So this sounds dumb but

macaroni1979 · May 2011

I am bummed out Asher can't have cake on his birthday. It sounds silly, but I want those cute pictures, I wanna see his face when he discovers frosting, I wanna see him eat it with his face, all the funny things that DD did on her 1st birthday. Since he can only eat 3 foods, I am making him either an Alimentum popsicle or an applesauce popsicle, LOL. Drinks

Here's to hoping he can tolerate cake next year!

Court0026 · May 2011

Not dumb at all! I would feel the same way. My friend's daughter has a LOT of allergies and they had to do a tray of sweet potatoes or something random like that with a candle. Here's hoping he gets a cake next year!

macaroni1979 · May 2011

Oh man, I didn't even think about the candle! Maybe I can make a little whole in an apple and jam a candle in??? It's either an apple, a carrot or a squash, guessing the apple is the most appetizing, lol!

carlinlp · May 2011

Not dumb at all...holidays are the hardest on us because it feels like everything revolves around food. I dread most of them.

I think you can make an apple super cute. What about something like this? You could carve out an apple and put applesauce in it if that is easier for him. You could even serve something like this to the guests?

magdusia · May 2011

I"M SORRY!!!! does she have EOS? not sure if that's the right name for it. It's when the child is allergic to most foods and only has one to 5 safe foods they can eat. Most kids get g-tubes when they have it.

Can he have coconut? maybe "So Delicious" ice cream? it's made from coconut milk and it's free of milk, soy, and so much more. they have chocolate and vanila flavor and my son looooves it.

hope she has a wonderful birthday!

macaroni1979 · May 2011

I like both ideas, i re-pinned them, so thanks! Luckily, it's a joint bday party for my DD, so our guests will still get cake!

magdusia · May 2011

carlinlp:
Not dumb at all...holidays are the hardest on us because it feels like everything revolves around food. I dread most of them.
I think you can make an apple super cute. What about something like this? You could carve out an apple and put applesauce in it if that is easier for him. You could even serve something like this to the guests?

i never realized this until my son was diagnosed. exactly what you said -- EVERYTHING revolves around food. it's amazing that even schools reward with food.

Apple does sound like a cute idea. you can shape it or put it in a cupcake wrapper

macaroni1979 · May 2011

magdusia:
I"M SORRY!!!! does she have EOS? not sure if that's the right name for it. It's when the child is allergic to most foods and only has one to 5 safe foods they can eat. Most kids get g-tubes when they have it.

Can he have coconut? maybe "So Delicious" ice cream? it's made from coconut milk and it's free of milk, soy, and so much more. they have chocolate and vanila flavor and my son looooves it.

hope she has a wonderful birthday!

I have no idea what EOS is, but you are sending me on a googling mission! Asher is allergic to milk, soy, egg, etc....and we have only found 3 foods (after trying most fruits/veggies) that he can eat. My latest discovery is that he does a lot of night crying if I give him chunks of food versus pureed.

I tried So Delicious when I was on the elimination diet, it is yummy! Thanks for the support!

magdusia · May 2011

macaroni1979:
magdusia:
I"M SORRY!!!! does she have EOS? not sure if that's the right name for it. It's when the child is allergic to most foods and only has one to 5 safe foods they can eat. Most kids get g-tubes when they have it.

Can he have coconut? maybe "So Delicious" ice cream? it's made from coconut milk and it's free of milk, soy, and so much more. they have chocolate and vanila flavor and my son looooves it.

hope she has a wonderful birthday!

I have no idea what EOS is, but you are sending me on a googling mission! Asher is allergic to milk, soy, egg, etc....and we have only found 3 foods (after trying most fruits/veggies) that he can eat. My latest discovery is that he does a lot of night crying if I give him chunks of food versus pureed.
I tried So Delicious when I was on the elimination diet, it is yummy! Thanks for the support!

i purchased their cook book a few months back.. so i'll grab the name tomorrow and post it here. i'll be able to tell the exact name when i see the cook book

the cook book is really good for kids w/ severe food allergies. it's amazing what you can make with just a few ingredients.

StarryNight39 · May 2011

I'm not sure your DS's specific allergies, but we love this cake! It is soy, egg, dairy, nut etc free. The frosting is as well. We use this cake for all my DD's parties

https://www.cherrybrookkitchen.com/products/yellowcake.php

https://www.cherrybrookkitchen.com/products/frosting_vanillaspread.php

macchiatto · May 2011

Oh man, that is tricky! I struggled with figuring out what to do for my boy's first birthday cake, too. I agree you can do some cute things with apples! I hope you're able to find some more foods he can eat soon!

Miller238 · May 2011

Have you looked into getting tested for Eosinophilic Esophagitis?

Also, at my daughter's first birthday, she was only drinking her Neocate. No foods were being eaten. So, I made her a Kleenex cake. I went on kleenex.com and created a personalized box and let her go to town ripping the kleenex out of the box.

magdusia · May 2011

Miller238:
Have you looked into getting tested for Eosinophilic Esophagitis?

Also, at my daughter's first birthday, she was only drinking her Neocate. No foods were being eaten. So, I made her a Kleenex cake. I went on kleenex.com and created a personalized box and let her go to town ripping the kleenex out of the box.

that's the name i was looking for.. EOS is short for EOSINOPHILIC. i found a group of moms on FB that have children with EOS and they mainly have g-tubes for nutrition.

shiloh17 · May 2011

My ds is milk, egg, soy, dairy, peanut allergic. I have used the cherrybrook kitchen mixes and subbed out with water, applesauce, etc. Its not a bad cake. The icing is good too. I have also done jello molds or finger jello. My kids love that, and it was also a big hit w preschool. I usually find those reynolds foil molds in target or even the dollar store. Instead of filling it w cake mix, I use jello. I have done mini stars, ghosts, hearts, xmas trees. I dont even remove them from the foil molds, bc it seves as a cute container, and a bday candle fits nicely. Good luck :-)

macaroni1979 · May 2011

Thank you everyone so much! This board is amazing, and it feels so great to connect with moms who know what I am going through, I have no one around me who can really understand. I did research EOS last night and it does sound a lot like my son's issues. I am calling the ped allergist and our pedi tomorrow. I really wish I could try Cherrybrook Kitchen cakes or even jello for him, but he really can't have anything other than apple, squash and carrot. I am saving the link for next year though!

magdusia · May 2011

macaroni1979:
Thank you everyone so much! This board is amazing, and it feels so great to connect with moms who know what I am going through, I have no one around me who can really understand. I did research EOS last night and it does sound a lot like my son's issues. I am calling the ped allergist and our pedi tomorrow. I really wish I could try Cherrybrook Kitchen cakes or even jello for him, but he really can't have anything other than apple, squash and carrot. I am saving the link for next year though!

I heard a lot of doctors dismiss the idea of EOS and a ton of them don't know what it is b/c it's not common. I would print some things out or perhaps get in touch with the moms of EOS. If you have FB, there is a support group (type the entire name). I'm sure they would be more than happy to answer any question. There is one particular young girl (she's about 13 or 14) with EOS adn she's been talking to younger kids about how it's ok to live with this -i'm tearing up just thinking about it. you can also go to youtube and watch one of their conferences. My son was never EOS but i was super interested in what it was b/c of how restricted they were and i use to belong to a group that had supported a florida girl w/ a peanut allergy and they were all there too support her too so i heard some of their stories.

Anyways -here is a cookbook that is geared towards EOS children. I highly recommend it even if your child is not EOS b/c it has so many recipes. There is a chapter where you can make 2 ingredient recipes.

https://www.apfed.org/APFED_Store.html it's the third book down.

Good luck and keep us posted.

twoasone1 · May 2011

My son has Eosinophilic Esophagitis. EOS stands for the group of Eosinophilic Disorders. There are a few and they are named depending on the part of the body affected.

It is hard to diagnose. The only way to diagnose it is through a biopsy. They then look at the number of Eosinophils (white blood cells) present in order to determine if you have it or not.

Not all kids with these disorders are tube fed. My son is, but he has a very severe form of it.

I would talk to your g.i. about it. I meant to say something to you before in a different post, and then got distracted. It is rare disorder, so many doctors are unfamiliar with it so it goes undiganosed frequently. Good luck!

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