Babies: 0 - 3 Months

UPDATE on excessive spit up/projectile vomiting

Several days ago I wrote a post looking for advice for DD's constant spitting up and projectile vomiting. My daughter continued to get progressively worse. Someone on the post suggested that she could have pyloric stenosis. After researching the condition, I became convinced that this is what she had. She couldn't keep any food down, was constantly hungry, continued to lose weight, and became very pale. After being persistent with our doctor that something was clearly wrong with my DD, he sent us to the pediatric e/r center at our hospital. After giving her an ultra sound, they confirmed my suspicion- she did have pyloric stenosis. She was admitted to the hospital immediately and scheduled for an emergency surgery the next day. It was so sad and scary to see her like that. They had to hook her up to an IV because she was so dehydrated. They had a very hard time doing that as her veins are so little and she was so dehydrated. She screamed and cried in pain as they had to stick her over and over again until they could find a vein that wouldn't collapse. Then they had to give her a catheter for a urine sample which also hurt her. I had to hold her down for all of this so she wouldn't move. It broke my heart and I cried so much to see her like that. We were admitted to the hospital at 11am Sunday and her surgery didn't end up being until 1:00pm Monday. So she also was up crying in hunger the entire time, as they wouldn't let me feed her. However... all of this was worth it because after her surgery, I feel like we have a brand new baby. The surgeon did such a great job. She is now eating well, keeping her food down, and sleeping well. She is also awake now more during the day, as she isn't so lethargic from not eating. I'm so glad we have this figured out and that it was taken care of! I can't believe my pediatrician's original diagnosis was that DD was spitting up so much because she needed to switch to a stage 2 nipple. I'm so glad I was as pushy and persistent as I was!
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Re: UPDATE on excessive spit up/projectile vomiting

  • Your poor little girl! What a rough experience for you guys. I'm glad she's doing better now. It really sucks that you have to fight so much to be heard by a doctor.
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  • Thank you! It was so hard to see her like that. The good news is I know she will not remember any of it... but I will never forget seeing her like that! You're right about the doctors... needless to say we are looking for new pediatricians!
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  • I am so sorry you and your LO had to go through this. Your story made me cry. It is great though that you advocated for your daughter the way you did and that she got the treatment she needed. It can be hard to convince a doctor that they are wrong but sometimes Mom really knows best.
  • utgirl2utgirl2 member
    My eyes teared up reading this!  Glad she is doing so great.  I hope you find a new pediatrician!
  • Wow I'm so sorry you had to go through that! It's awesome that you stood up to the doctors - I'm sure it wasn't easy. Your DD is adorable!
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  • So glad you got that cleared up! I would have been scared to death! Hope your DD continues to do well!
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  • imagecarawaynow:
    Wow I'm so sorry you had to go through that! It's awesome that you stood up to the doctors - I'm sure it wasn't easy. Your DD is adorable!

    Trust your gut!  I am glad your little one is doing much better.  

  • I'm so glad you were persistant and got an acurate diagnosis.  I was the one that mentioned Pyloris stenosis. What you had described had sounded way to similar to our experience. Our DD was diagnosed two weeks ago tomorrow. She was diagnosed at 5 weeks old on a Thursday afternoon at 3:00 in the afternoon and was in surgery the same night at 10:00pm!  We/She was lucky that she wasn't dehydrated yet and her levels were still good so they were able to take her to surgery that night which thankfully eliminated the extra day without food. It's very hard to try and get a 5 week old to understand why you won't feed her when she is starving.  She did have an IV and the same thing happened, they messed with one hand for 10 minutes before moving to the other hand.  DH was with her as they would only allow 1 parent in the IV roomm and I was fine with that. He said she shed her first real tear :(  But the surgery was an amazing quick fix and she is doing so good now!  Thankfully we have a pedi that was on top of it and we got her diagnosed so quickly. The pedi even called us that night at 9:00 pm at the hospital and gave me her cell phone and told me to call if we needed anything!  Needless to say we will be sticking with her :)

    So glad your LO is on the mend.  It was a very scary experience and one I will never forget but so glad they could be cured and back to normal.  Hugs to you for having to go through that.

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  • I'm sorry you and LO have had to go through this, but it's great you were persistent and got it figured out!!

    I just wanted to suggest that you look into possibly getting a new pedi. I know doctors are only human and everyone makes mistakes, but projectile vomiting is the hallmark sign of pyloric stenosis! I'm a peds ICU nurse and when I hear projectile vomiting that's the first thing I think of. Obviously you can have that without it being pyloric stenosis, but it should have definitely been ruled out first!! 

    Good luck and glad to hear your little one is doing so well!!

     

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  • imageanangelbug:

    I'm so glad you were persistant and got an acurate diagnosis.  I was the one that mentioned Pyloris stenosis. What you had described had sounded way to similar to our experience. Our DD was diagnosed two weeks ago tomorrow. She was diagnosed at 5 weeks old on a Thursday afternoon at 3:00 in the afternoon and was in surgery the same night at 10:00pm!  We/She was lucky that she wasn't dehydrated yet and her levels were still good so they were able to take her to surgery that night which thankfully eliminated the extra day without food. It's very hard to try and get a 5 week old to understand why you won't feed her when she is starving.  She did have an IV and the same thing happened, they messed with one hand for 10 minutes before moving to the other hand.  DH was with her as they would only allow 1 parent in the IV roomm and I was fine with that. He said she shed her first real tear :(  But the surgery was an amazing quick fix and she is doing so good now!  Thankfully we have a pedi that was on top of it and we got her diagnosed so quickly. The pedi even called us that night at 9:00 pm at the hospital and gave me her cell phone and told me to call if we needed anything!  Needless to say we will be sticking with her :)

    So glad your LO is on the mend.  It was a very scary experience and one I will never forget but so glad they could be cured and back to normal.  Hugs to you for having to go through that.

    thank you SO much! If not for you, this may still not be figured out!

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