Special Needs

I just had a miracle

You are never going to believe this. When our neuro compared Landon's MRI from January to the one he had on Wednesday.....IT'S BETTER NOT WORSE. HIS BRAIN IS IMPROVING!!!!!!!!!!!!!!

PRAYERS DO WORK!!!!!!!

Re: I just had a miracle

  • :)  So happy for you.
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  • That's wonderful news!!!
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  • That's awesome!!! So glad you got good news. 
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  • That is wonderful!  I just read your original post and was hoping that you got good news!  What a sense of relief you must be feeling right now! :)
  • Yay for the good news!

    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • beyogabeyoga member
    That's fantastic!  Yeah Landon!!!!
  • That is wonderful news indeed!!
  • yayyyy way to go Landon & Momma!!
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • Isn't it wonderful to leave an appointment with good news??? I hope you have many more appointments like that.
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  • seriously..... I cannot believe this.  I have no idea why yesterday we were told that the delayed mylenation was getting worse and then today when the neuro actually compared both MRI's is clearly showed that there was a definite improvement.  Plus the part of his brain that is smaller is growing as well.  Of course it's still small but it's growing and seems to be growing at the same rate as the rest of the brain.  Our next step is genetic testing which we will draw blood on wednesday after his swallow study. 

    Happy Mother's Day to me!!!!

  • imagelesleytaylor:

    seriously..... I cannot believe this.  I have no idea why yesterday we were told that the delayed mylenation was getting worse and then today when the neuro actually compared both MRI's is clearly showed that there was a definite improvement.  Plus the part of his brain that is smaller is growing as well.  Of course it's still small but it's growing and seems to be growing at the same rate as the rest of the brain.  Our next step is genetic testing which we will draw blood on wednesday after his swallow study. 

    Happy Mother's Day to me!!!!

     

    That is fantastic!

  • Awesome news!!!  So happy for you! 
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  • mommy06mommy06 member
    That is wonderful! Yes, prayers do work, that is why Allison is here with us today :) I hope it keeps getting better!!!
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  • Yay for great news!!!
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