2nd Trimester

update on baby - heart problems / amnio

hey ladies - it's been a rough / emotional day. but as i sit down at dinner i can gather my thoughts & give u all an update.
we went to have an echo done on baby. and the cardiologist diagnosed him/her with a heart defect. a defect called Tetralogy of Fallot. he/she will need surgery between 6weeks-4 months of life. i will deliver at CHOP. and he/she will be in the best of hands for constant monitoring. and again for the surgery. 
both of the doctor's we saw today were very encouraging that the baby will be okay, especially with the advancements in surgery & today's medical world...and delivering at CHOP. i know there may be problems down the road, but right now i'm just focused on what we can fix to make better.
we opted out of he amnio. he gave me a 30% chance of a genetic disorder. but also told me the risk of getting it could put me into labor, with being almost 24 weeks. we didn't see the 30% high enough for us to risk having a premature baby, on top of a heart defect. the doc was very nice about it - and gave us time to talk & think about it.
i am very happy to be under that practice's care. and we will be visiting CHOP within the next week.. i'm scared for my baby - but happy to have answers to this nightmare i've been having for a few weeks.(i'm sure many more questions will come up!!)
 all in all, the baby will be okay! your prayers & thoughts are so much appreciated. 

and to announce - WE ARE TEAM PINK!!!! baby girl will be here end of summer / beginning of fall!! we are so excited.

Re: update on baby - heart problems / amnio

  • Sounds like you are in good hands and you are being thoroughly informed through  this difficult situation.  T&P your way, and wishing you the best outcome! 
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  • acaveracaver member

    So sorry you have to deal with this, but it sounds like you and the doctors have a great plan!  I'm sure everythign will workout okay in the end! 

    YAY for TEAM PINK!!!!!!!!

  • My sister's friend just went through something similar at CHOP (baby had a hole in her heart) and baby is now home and doing well.  Good luck--you'll be in the best hands!
  • It sounds like you and your LO are in good hands and have a strong plan for how to deal with the heart defect.  ((((hugs))))
    BFP#1 4/17/10...EDD 1/6/11...M/C 5/28/10 BFP#2 11/19/10...EDD 8/4/11 Squeaker born 7/30.
  • You are def. in good hands at CHOP and I will be thinking of you and you and your little lady!
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    Go Phils!!
  • T & P for your future beautiful baby girl!
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  • Thank God for the advances in medicine today. My friend's niece just had a baby with his organs formed on the outside. He is about nine months and doing pretty good.

    I am sorry you and baby girl have to go through this. I have many T&P's coming your way. It sounds like baby girl will get all the help she needs at CHOP.

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  • A good friend of mne went through a similar thing. Baby is 2 now, does have some long standing problems that were complications from surgery, but he is a happy boy. He ended up needing surgery at 2 days old (more problems than expected).

    I hope all goes well!

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  • That is great news!!! Hoping for nothing but goodness for you and yours.
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  • I am so sorry you and your family are going through this. Right now you and I are in very different circumstances but with many similarity's. At my 18 week ultrasound on Monday we found out our daughter has Spina Bifida. We are opting to have surgery in utero to give her a better chance. We live in Detroit but I leave for CHOP next week and will have to  stay there the remainder of the pregnancy. If you every need to talk I check the boards almost everyday but not sure how to send PM. I hope everything goes well with your daughter and ya never know maybe we will actually meet at CHOP in a few weeks.
  • I am sorry you are going through a tough time.  I just wanted to say I have nothing but the highest regards for CHOP.  My daughter goes there for annual observation for congenital scoliosis.  My best friends little boy has been going there since birth and had a kidney transplant at 3.  He is knock on wood doing great a year later.  Another friend's baby was born there because of a hole in her heart and had surgery at 2 days old.  She is also doing great a year later.  She had a similar situation because there was a chance she had a genetic disorder, but thankfully that wasn't the case.  I hope you have the same positive outcome.
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  • imagedadonet:
    I am so sorry you and your family are going through this. Right now you and I are in very different circumstances but with many similarity's. At my 18 week ultrasound on Monday we found out our daughter has Spina Bifida. We are opting to have surgery in utero to give her a better chance. We live in Detroit but I leave for CHOP next week and will have to  stay there the remainder of the pregnancy. If you every need to talk I check the boards almost everyday but not sure how to send PM. I hope everything goes well with your daughter and ya never know maybe we will actually meet at CHOP in a few weeks.


    i'm also sorry you are going through this. i only live about an hour and half away from CHOP, and will be traveling back & forth for OB appointments & then staying there when my baby is born. when is your due date ?? keep in touch!
  • KrisM86KrisM86 member
    Congrats on your little girl! I'm so sorry for the stress you are going through, but it sounds like you are in wonderful hands. I'll be sending T&P to you!
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  • Sounds like you are in good hands..Congrats on your baby girl. sending you & the baby thoughts & prayers.

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  • GVSU-04GVSU-04 member

    I'm so sorry you're dealing with this, but it looks like you and your baby and in good hands.  I feel so fortunate that we live in the time we do with all the medical advancements.

    Also, congrats on team pink! 

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  • My due date is October 3rd but more than likely will not make it to full term. If by some miracle I do they will do a c-section at 37 weeks. Im glad you live so close making arrangements to stay is turning into a huge pain lol. When is your LO due? We will defiantly have to keep in touch:)

  • It sounds like there is a good plan in place and you will be in good hands at CHOP.  I had a patient when I was practicing that had a daughter with Tetralogy of Fallot.  The daughter was also my patient- healthy, 5-year-old girl.  Best of luck to you.  T&P for you and your family!
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  • imagedadonet:

    My due date is October 3rd but more than likely will not make it to full term. If by some miracle I do they will do a c-section at 37 weeks. Im glad you live so close making arrangements to stay is turning into a huge pain lol. When is your LO due? We will defiantly have to keep in touch:)



    my LO is due august 28th. i will most likely have a c-section around that time. but i'm not sure of that yet. we'll have more answers when we visit with the doctors and specialists at CHOP in the next 2 weeks. but we'll be down there at the same time. keep me updated! T&P for you!
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