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September 2011 Moms
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Update from the doctor.

SamJusticeSamJustice member
in September 2011 Moms

After a two and a half hour visit with a specialist and U/S tech, little Max has been confirmed to have Gastroschisis. However, the good news is that there is absolutely no chromosomal abnormalities that they could find (FI and I decided against an amnio).

When I tested positive for NTD, what the nurse did NOT tell me was that the same test also shows an indication for the gastroschisis. So all that worrying and panic attacks about both that AND spina bifida was for absolutely nothing.

I will now have to go in for ultrasounds every three weeks as well as my appointments with my regular doctor every four weeks. I also have to set up an appointment with the surgeon and what not at the Children's Hospital of Wisconsin about delivery and what our game plan will be. 

Max will have to go into surgery as soon as he can (if he's healthy enough for it, around two hours after birth. Otherwise it would have to be a couple days after). Then he'll be in the NICU for 6-12 weeks. Of course, there are more risks involved before birth, during birth, and of course during/after surgery. I don't really want to bore everyone with the details.

But I really want to thank everyone for the help and support during this last week. It's been mentally draining and just... Thank you for all the prayers. You have been a wonderful group of women.  

 

February 19, 2010- BFP! March 14, 2010- M/C January 17, 2011- BFP! April 26th, 2011- It's a boy! Due September 20, 2011 May 2, 2011- Confirmed Gastroschisis August 7, 2011- Labor begins August 12, 2011- Max is born October 4, 2011- Max comes home!

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Re: Update from the doctor.

  • Phoebe623Phoebe623 member

    I am glad that the issue is limited to just the gastroschisis!

    Sounds like they have a plan of attack and baby will be just fine, what a relief!

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  • SamJusticeSamJustice member

    Indeed. It was so relieving. He will most likely be smaller than a healthy baby his age, but it shouldn't anything to really worry about. But they want to monitor like crazy.

    But I guess that just means I get more pictures =D

    February 19, 2010- BFP! March 14, 2010- M/C January 17, 2011- BFP! April 26th, 2011- It's a boy! Due September 20, 2011 May 2, 2011- Confirmed Gastroschisis August 7, 2011- Labor begins August 12, 2011- Max is born October 4, 2011- Max comes home!

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  • JaninneAlvaradoJaninneAlvarado
    I personally know a girl who had a baby boy about 4 years ago now and he was born like this too. He had the corrective surgery and he is a healthy little guy these days. Good luck hun and we'll all be here for you and little Max.
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  • sandrarn11sandrarn11

    Thank goodness for a very positive prognosis! 

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  • exohexoh

    I am sending you all of my positive vibes.  I just know that if you and DH can stay positive, you can find the light in this entire situation.

     Best of luck with everything you're about to encounter.

     

    <3 

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  • brit072206brit072206
    Lots of thoughts and prayers your way! It sounds like you are in good hands.
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  • dianamcudianamcu member
    You and Max will be in my thoughts!  Hope he comes out strong and a fighter!
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  • littlecookielittlecookie member
    Will be keeping you and baby Max in my thoughts. I pray he's strong as can be when he gets here.
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  • Jo&Matt6609Jo&Matt6609
    I am sorry it was confirmed as gastroschisis, but I'm happy that is the only issue, and there are no chromosomal problems. And it's a fixable issue, too, which is great! You and baby Max will continue to be in my thoughts.
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  • AaronKaraAaronKara member
    so glad to hear that it is just the gastroschisis.  I've been wondering about you.  Will continue to pray for little Max that everything will go smoothly, and surgery will be a 100% success!
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