- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Special Needs
New baby having seizures...
Im looking for someone who may have gone through what i am going through right now. Had our little man and shortly after birth he started having seizures. he is 11 days old today and we are still in the nicu with no answers. They have ruled out brain trama, infection, and the b6 deficency, and are now testing for rare genetic disorders? little man is doing great and we are hoping to be going home soon but i really need some help here ladies!!
This discussion has been closed.
Re: New baby having seizures...
congrats on your son!
our son also had seizures shortly after birth. he does have some brain abnormalities and a genetic syndrome that was just now diagnosed. his seizures are part of his syndrome.
we were in the nicu for 32 days but that was because he needed to feed and grow.
i've come to learn that many more children have seizure disorders than i had realized. if his seizures are controlled and he is doing well in all other areas i would hope they let you go home soon. you will most likely have lots of follow-ups afterwards with neuro and genetics.
also, i just have to say this from experience...stay away from google. don't google anything because all you will find are things that do not pertain to you and will make things scarier. take it one day at a time until he has an official diagnosis.
hope he gets to come home soon!
My son started seizing 6 hours after birth. It was determined he was oxygen deprived in utero and he does have a brain injury. We also did all the chromosome testing and genetic stuff, since he also had a blood clot in his brachial artery and kidney and liver damage. All was negative. He is doing very well now. We were in the NICU 27 days. I remember feeling so helpless and it was the hardest time of our lives. Hang in there.
I hope you have a short NICU stay and your LO recovers quickly.
Congratulations on your son!
This must be a very hard time for you. We went through seizures, beginning at about 24 hours of age; and subsequently ended up with a stroke diagnosis. Spent 11 days in the NICU. Also have some genetic stuff going on, but aren't really sure of the implications yet.
I wish you good luck and strength during this time, and the coming months. Just remember, you are not alone. It may help you to keep a little book with you and write everything down (names of tests, dates, docs/nurses/rt's, etc. also, questions that you have as they come up.) This helped me keep a level head.
Also, the BEST advise that I've ever gotten in my life was from a NICU nurse who told me that when my mind wandered, and I started to panic, just say to myself "I will not play what if"....Still doing that about 13 months later.
All the best to your family. Remember, the ladies are here if you need them, and they are fabulous!