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Lo's feeding issues - advice needed

adrielegorburuadrielegorburu member
in Preemies
My little Madison was a champion eater - she was taking full feeds (10 ml's of breastmilk every 3 hours) and was off TPN.  She was pooping like a champ too - because of her open PDA she had a second round of Indocin and they stopped her feeds and put her back on TPN for those three days.  After that there were three transfusions - during which of course - no feeds.  when they started to feed her again (5ml's every 6 hours) she was constipated for two days.  nothing a glycerin sliver didnt fix but all of a sudden green bile started to come up into her OG tube.  Around the same time they discovered a yeast infection on a culture of her ET tube and started anti-fungals and anti-biotics. So NO FEEDS.  It has now been over a week and a half with no feeds.  She appears to be doing much better in terms of the infection but she still has green goo in her tube and they wont start feeding her until that stops.  Only in the meantime shes not growing, cant get off the vent and I feel terrible that she isnt being fed.  I feel like the green goo is the equivalent of the yellow bile I would throw up when there wasnt anything left in my tummy during morning sickness.  The only thing that fixed that was food.  I'm terrified of NEC - and the doctors dont seem to think the green goo is a sign of that. My husband thinks we should insist they begin feedings.  I would rather think the doctors are right to hold them still but I worry that the longer she goes without food the worse her digestive system will be.  Anyone have a similar problem? Advice?
image image imageLilypie Premature Baby tickers
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Re: Lo's feeding issues - advice needed

  • sail123sail123 member

    Madison is adorable!

    I don't have any advice but can tell you that I understand how you feel. One of my little guys wasn't eating for about a week for various reasons and it made me so sad. Once they said he could eat again he was much healthier and ate really well and really never looked back. At the time it felt like an eternity when he wasn't eating. But looking back it wasn't that long and it was worth it for him to have the break.

    I hope they say she can eat soon, hang in there mama.  

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  • Kiki11Kiki11
    My little guy had a lot of issues that caused them to stop feeds during his first month of life- respiratory issues, blood pressure issues, never digestive issues.  So he basically didn't really start 'eating' until after that first month.  He wasn't weaned off TPN completely until around 6 weeks old.  He wasn't able to do a lot of growing that first month- birth weight was 1 lb 9 oz, 1 month weight was 1 lb 15 oz.  But after they got all his other issues under control and he was able to work up to full feeds, he started adding more weight.  I was always afraid he was going to have digestive issues after going so long with limited feeds, but that turned out to be the one area that we never had to worry about!  I know it's frustrating, but I'm sure the doctors are doing what is best for her.  Hopefully she'll get over this hurdle and feeds will be able to start up again soon!
    TTC with unexplained IF since 8/2007 6 losses, one beautiful perfect boy in our arms Lilypie Premature Baby tickers
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  • massnkmassnk
    That is a tough one.  Its so hard to be in the NICU and feel you aren't the one getting to make the decisions for your lo.  I would trust the docs though because they handle preemies day in and day out and have probably had numerous cases like your little girl.  Although I bet once they decide starting feeds again is safe she will thrive!  She will be so happy to have a full belly again.
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  • witt0198witt0198
    My brain goes to reflux. Some kiddo's on this board I know of had trouble weaning from the vent and it was eventually discovered they had bad reflux that was affecting things. With the green goo and trouble kicking the vent and infections, I wonder about reflux and if the doctors have considered that yet. Is her bed at an incline? If her BP and things don't need her to be flat, maybe asking the nurses to try elevating the head of her bed to 30 degrees or so just to see if that might help......couldn't hurt really.
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  • lemen99lemen99 member
    I'm sorry!  It took Andrew a while too - it's all slow going - just when they ramped up feeds, they'd have to back off, etc.  Hang in there!
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