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My Intro, and endo gals please come in...(sorry long)

amandaleigh1amandaleigh1 member
in Trouble TTC

Most of the pertinent info is in my siggy. I have responded to postings here and lurked but I don't recall introducing myself in any meaningful way. It is time to come out of the shadows and make a proper introduction.

I mostly hang out on the TTC over 35 board, and I love it there, but I would like to get a chance to talk with more people who are dealing with TTC and endo, and I thought I might find that here.

So anyhow, I had a lap on April 1st to remove a bunch of adhesions and endo (deemed moderate by my RE), and today discussed next steps. He could not speculate on my chances now for conception compared to before and basically said some women with endo are infertile while others are not, and there is no way to tell my looking (this is even after visible signs of the disease are removed).

My RE recommended moving now to Femara medicated IUI (at approx 700 bucks a pop), which I am balking at due to cost, and some willingness to try a few months on my own.

I also think if I can't get KU on my own due to endo, IUI will be subject to the same pitfalls and thus a waste of time and money.

So, are there any other endo gals who went or are going straight to IVF?

Also, I am 100% OOP and this of course factors quite a bit in my thoughts here.


IVF #1 ET 1 d3 embryo 10/30/11 BFP
3 Embryos frozen (1 d5, 2 d6)

DS born 07/29/12

FET #1 ET 1 d5 embryo 02/10/15 BFN

FET #2 1 d6 embryo didn't survive thaw, transferred last d6. CP :(

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Re: My Intro, and endo gals please come in...(sorry long)

  • Sweets11Sweets11 member

    I only did two rounds of IUI and now we're moving on to IVF. 

    We decided to only do the two rounds because my RE suspects that I have tubal damage.  Also, my Province's healthcare is underfunded so I wasn't getting proper monitoring with IUI.

    I'm sorry to hear about your endo, it really does suck!

    TTC since August 2009
    June/July 2011 - IVF #1 - Transfer cancelled due to OHSS
    23 perfect embryos. All 23 made it to freezing!
    September/October - FET #1 - October 12th - 2 Grade A embies
    October 20th - BFP??! EDD - July 1, 2012
    Beta #1 = 154, Beta #2 = 352 Beta #3 = 3,800
    U/S #2 - November 14th = 133 bpm! U/S #3 & 4 - November 30th and December 7th = 163 bpm! U/S#5 - January 30th - TEAM PINK!!!
    Baby Sweets born on her due date!
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  • tshotttshott member
    I also have endo, and my RE had me do three IUI cycles before moving on to IVF.
    image
    Mrs. Little Drew 10/25/08
    Blog
    TTC since 1/2010 - Dx with Stage IV Endo
    11/10 - 100mg Clomid + trigger + IUI + Estradiol + Progesterone = BFN
    12/10 - Unmedicated cycle due to RE not doing treatments in December = BFN
    1/11 - 100mg Clomid + trigger + IUI + Estradiol + Progesterone = BFN
    2/11 - Same sh!t, different month = IUI cancelled due to no response = BFN
    IVF #1 - Start stims (Follistim) 5/10, add in Ganirelix 5/14
    ER 5/21 - 13 retrieved, 7 mature, 5 fertilized; ET 5/26 - transferred one perfect 1AA blast. 3 snowbabies.
    Beta 6/3 - 15.8; Beta 6/7 - 21.8; Beta 6/10 - 7 :(
    FET - Transferred 1 AA blast 7/11. Beta 7/20 - 311! Beta 7/22 - 784!! First u/s 8/10
    *~PAIFW/SAIFW~*
    BabyFruit Ticker
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  • MrsLoosMrsLoos

    I hope it's okay for me to respond!

    We did 1 IUI with Femara before I was diagnosed with Endo. After my diagnosis my RE suggested we move straight to IVF. 

    Check out the blog IVF Authority (you can search endometriosis, there are quite a few posts on it) my RE has the same philosophy and after much research on my own I felt like it was the best decision, and it paid off.

    Good luck to you!

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  • AmyD583AmyD583
    After my last lap in dec my RE said he felt very comfortable with us trying on our own for a few months since I was all cleaned out. He also said it would make the injects more likely to be successful after the lap. I have heard the theory on going straight to IVF and it makes sense. I went the route of meds only first since that's what was recommended by my RE, but I am still in my 20s. If I was over 35 I would be more inclined to say screw the IUI and go for whatever had the highest success rate. Good luck with everything!
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  • CluckyEVCluckyEV member

    Welcome!  Don't have any advise on this one.  Just wanted to wish you GL!

    "When the world says, 'Give up,' Hope whispers, 'Try one more time.'" -Anonymous

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  • mbiondichmbiondich
    I just discovered that I had endo... after some serious pain in month 7 of TTC, I went in and had the U/S and a pelvic.  The dr couldn't detect any normal tissue of my right ovary and was unable to even get to it when he did a pelvic exam.  He correctly decided to move right past the laproscopy and do an exploratory laporatomy... where he found that my right ovary was consumed in masses of endometrioma and completely non functional.  He removed the right one completely since it was no longer even working. The left side was also pretty bad and he did have to remove 1/3 of that but was able to save the rest of it.  So, I still have eggs available on that side but will only have IVF as an option for pregnancy... I can't produce enough progesterone to maintain a pregnancy and I have tubal damage on that side.  I am doing a 6 month Lupron depot therapy to alleviate any endometriomas that may not have been visible on the left side... from there we go straight into IVF.  So, I will be here for at least 8 more months by calculation... but, I am here to listen or try and help (I am new on here!!) if I can while you have to be here!!  Good Luck!!
    Me- 30
    DH- 28
    Actively charting and TTC since September 2010 although not using BC since May 2007
    Laporatomy March 8th,2011
    Stage IV Endometreosis officially diagnosed
    Removal of right ovary and partial left ovary
    Lupron Therapy began April 2011 and will continue for 6 months
    IVF to follow the Lupron therapy
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