(I also posted about this on the Maine board)
So it turns out I have the nasty bacteria that most people with CF eventually culture, and it is very
hard to get rid of and is responsible for a lot of the decline in lung
function that most people with CF get. (And this is not even what I am
upset about...well, I am a little, but that's not what's making me want
to cry).
I've had it before, and we've gotten rid of it before. If you catch it early, you can sometimes get rid of it. Soooo, my doctor wants to hammer me with antibiotics. And the best antibiotics.
What am I upset about? I can't nurse Lily while I am on these meds. I am going to be on them for 10 days. She is a milk baby - still nurses 7 times a day and hardly takes any solids. She won't take a bottle, so we're really stressed about how this is going to go (but she does great at drinking water out of a sippy). I'm afraid she is going to look at me and cry because I can't nurse her, and I know she isn't going to understand why I won't let her nurse. I am afraid she is going to lose weight.
And I am really afraid that she is going to wean. I'm
afraid that I won't respond to the pump and will loose my supply (the last two times I tried to pump with my Medla, it was because I was engorged, and I still only got an ounce after 20 minutes of pumping - so I am going to rent a hospital grade one). And I
don't have a freezer stash because I was sick of throwing away milk that
she wouldn't drink out of a bottle, so she's got to have formula. Which
I am okay with, but the doctor said she may not like formula and we
made need to start her on whole milk a little early. And then her doctor
said babies usually won't go back to nursing after they've had whole
milk.
But, of course, my brain knows it's more important for Lily to have a healthy mom than to nurse for a few more months. For some reason I have major issues w/ breastfeeding and get super emotional about the idea of weaning. I had all these visions of nursing her until 18 months or longer.
Re: Crappy News (BFing related)
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No advice, but wanted to let you know I'm sorry you're having such a hard time right now.
You're right L needs a healthy mama... but I'm sorry it's such a struggle!!
"The House We Built."
A journey of building the dream.
I'm sorry you're having a hard time with all of that. But you said it, it is much more important for your DD to have a healthy momma than to continue BF. You can do this! It'll all be ok, albeit probably hard on many levels, but it is what is best at this point in time. Good luck!!
Out of curiosity, what happens if it goes untreated? I would assume it would be like any other bad bacteria. Can you pass it on to her through your BM?
Ditto this.
It's kind-of a funky thing. This bacteria is present everywhere and usually doesn't pose a risk to healthy people. But it loves the thick, sticky mucus of people with CF. After a period of time, it creates this biofilm in our lungs and it is very hard to get rid of. That's why my doctor is being so aggressive - he wants to kill all the bugs before they have a chance to create the biofilm. I am not contagious to other people (except maybe other people w/ CF) because most people's lungs don't provide a good environment for this bacteria. (And, specifically to your question, the bacteria is not present in my BM, it's only in my respiratory tract).
i can't speak from experience b/c my supply sucks and is usually gone by 10months, but my sister has been through several surgeries and illnesses while nursing and made it through- she just weaned the twins at 14mo. granted, it wasn't 10 days BUT her twins did not take a bottle either so this most recent time (she had her thyroid removed, couldn't nurse for 2 days) we just went with sippy cups. they didn't drink much but i think using a sippy helped it not replace the breast since its totally different.
chin up- i can completely see why you are upset and i think its justified but a healthy mom is the MOST important thing for lily!
I'm so sorry
"Worst case scenario" is not bad at all! 10 months is a long go at breast feeding - good for you!!
And remember, you are't there yet. Focus on right now and doing what you can. I've heard the hospital grade pumps are great, and I bet that helps you out a lot.
Good luck, and you're doing a great job! And I hope you kick this thing ASAP!