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*IWillAlwaysLoveYou*

Million$$BabyMillion$$Baby
in Preemies
Any updates on the potential NEC in your daughter? I hope everything is okay.
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Re: *IWillAlwaysLoveYou*

  • IWillAlwaysLoveYouIWillAlwaysLoveYou

    Thank you for your concern

    They x-rayed Addie and she definitely has NEC. She's on major antibiotics since yesterday had 1 platelet transfusion yesterday and 2 so far today but the doctors think she'll need more tonight. They are x-raying her every hour to hour and a half but so far nothing has changed. The docs think they caught it early but I'm so scared she'll have to have another surgery (she had PDA surgery at 6 days old). The chances of making it out of this surgery are 10-15%. My poor baby girl has been miserable all day.

    image Lilypie Premature Baby tickers Lilypie Angel and Memorial tickers BLOG: http://tripleblessings.blogspot.com/ <a href="http://s1081.photobucket.com/albums/j347/j-cason/?action=view
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  • Million$$BabyMillion$$Baby
    Oh man, I'm so sorry that she has NEC. I am hoping that the antibiotics can do their thing and she can avoid surgery. You're in my thoughts!
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  • IWillAlwaysLoveYouIWillAlwaysLoveYou

    imageMillion$$Baby:
    Oh man, I'm so sorry that she has NEC. I am hoping that the antibiotics can do their thing and she can avoid surgery. You're in my thoughts!

    Thank you! We're trying to keep positive but it's hard knowing she could have a life threatening surgery quite soon. We've already lost one of our girls I don't know how I will go on if something terrible happens.

    image Lilypie Premature Baby tickers Lilypie Angel and Memorial tickers BLOG: http://tripleblessings.blogspot.com/ <a href="http://s1081.photobucket.com/albums/j347/j-cason/?action=view
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  • Million$$BabyMillion$$Baby
    imageIWillAlwaysLoveYou:

    imageMillion$$Baby:
    Oh man, I'm so sorry that she has NEC. I am hoping that the antibiotics can do their thing and she can avoid surgery. You're in my thoughts!

    Thank you! We're trying to keep positive but it's hard knowing she could have a life threatening surgery quite soon. We've already lost one of our girls I don't know how I will go on if something terrible happens.

    I'm just so sorry. I have heard many stories of babies with NEC who had surgery and came out of it just fine. In fact, a friend of mine had 26 weekers and her daughter needed surgery for NEC at a few weeks old. She is a happy, healthy 2 year old now. There's always hope.

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  • njdcgirlnjdcgirl member
    I'm sorry to hear that it is NEC.  I'll be hoping that she doesn't need the surgery. I can only imagine how scared you are - keep the faith. Keep us posted when you can and I'll be thinking about her.
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  • miafromabmiafromab

    I meant to reply yesterday but did not get on the computer. I posted in someone else,s NEC question and just copied it to here.

    Here is our NEC experience and DD was caught early stages of NEC.

    My 23week-6dayer was diagnosed with NEC a few days before we were suppose to be discharged (so glad it was caught). DD was having blood in her stool. She didn't really have any other symptoms. She did have a shadow on her xray. We caught it very early...very lucky of us.Our daughter was about 3 months old so that was actaully a little more rare. My understanding is that it is more common within the first month or two of life. It as you know is a bowel wall infection (though I could be remebering wrong over 5 years ago). The infection can kill the bowel wall and weaken it plus the gases from the bacteria and bowels can cause the dead bowel and bowel walls to rupture. If rupture occurs surgery is needed and usually a second surgery to reconnect bowel and remove the ostemy bag.m DD was xrayed every couple of hours. they also stopped all oral feeds and had a small stomach pump type thing to keep digestive juices from traveling down. her feeds were stopped for almost2 weeks during antbiotic treatment. She did get a lil distended but we were very lucky she never had any bowel rupture which is what often happens. It is life threatening and the complications can be life threatening and serious as you may know.

    I am sorry you LO is having to fight this. I am sorry my message was not as personal as it should be and is a copy/paste.

    I wish lots of T&P to y'all!

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