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August 2011 Moms
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need some reassurance please

liljen7755liljen7755 member
in August 2011 Moms
Hi ladies! I wanted to see if anyone has heard of this or knows anything about this. My docs office called me this afternoon to talk about my anatomy scan. They said the scan itself was absolutely perfect. They said it was perfectly clear and everything looked amazing. The thing was that they found the baby has a cyst on her brain. The nurse said that it sounds worse than it is and that its extremely common. She said that she calls women about 2-3 times a week to tell them the same thing. I have to go back in 2 weeks to repeat my ultrasound. Has anyone else heard of this? Thanks so much!
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Re: need some reassurance please

  • kjuryflkjuryfl member

    Yes, my baby has bilateral choriod plexus cysts (CPC's). We were referred to a Perinatal Specialist who basically told us that they are part of development and most times resolve on their own. We are going back next week to ensure that that is in fact happening. If you google the cysts you will find *tons* of success stories and inspirational pages. While the CPC's are markers for certain conditions, if all other signs are pointing to a healthy baby then I wouldn't worry too much. 

    Keep your hopes up and don't be discouraged!  

    Married: 3/01/08
    Baby Girl: 7/29/11
    Angel Baby: M/C 7/15/14 at 7wk
    BFP: 8/23/14 - Due 4/28/15  - It's a BOY!
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  • ETweetETweet member
    One of my best friend's babies had this and it went away. Like your nurse said, it is very common. Her baby was born healthy and perfect in every way!
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  • liljen7755liljen7755 member
    Thank you so much ladies! You guys are wonderful. You make me feel much better. I started reading about it and youre right, it will be fine.
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  • AshleyMF1983AshleyMF1983 member

    Hello!

    My baby has a choroid plexus cyst as well.  I'll just repost what I said to my friend kjuryfl in hopes that it reassures you:

    "I am going through the same exact thing.  I had my anatomy scan on March 1 and was told my baby girl has 1 choroid plexus cyst on her brain.  I am positive this is the same type of cyst you're talking about. We have no other markers of Down Syndrome or Trisomy 18. I took the news very hard, and was horribly depressed for a week.  I would just burst out crying at random moments throughout the day.  My doctor is the opposite of your doctor - she's not worried at all.  She did say wecould have an amniocentesis if we wanted, but given the risk of miscarriage, we declined.

    I just recently started feeling better mentally.  I did a lot of researching online - even though people told me not to.  Do you know what I found?  That it actually made me feel BETTER.  The reason is that I could not find a single "horror story" where a baby had choroid plexus cysts (and no other markers) and turned out to have one of those disorders - they were all healthy.  I highly recommend this site I found which has a message board where you can read tons of success stories: https://choroidplexuscyst.org/forum/

    There's also this great article I found called "Obsetrical Sonography: The Best Way To Terrify A Pregnant Woman."  It was written by an OB/GYN.  He says that the research that found that choroid plexus cysts alone are related to higher chances of Trisomy 18 were all done on high-risk pregnancies and the mothers were over 35 years old. To quote him, ?I have no instance in my recollection where this 1 abnormality was the sole reason I was able to recognize a fetus with a chromosomal problem in a low risk pregnancy.   I believe that the authors who did this excellent research in the high risk patients are becoming aware that these abnormalities are not proving to be as present in the low risk patients as they had hoped.?


     

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  • liljen7755liljen7755 member
    Thank you so much for posting! That really does help so much! It makes me feel a lot better. Its comforting to hear other people with the same thing. They said her scan was absolutely perfect and she has no markers or anything that would point the docs to believing she would have downs or anything else. Thanks again!
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  • mooninlvmooninlv
    yes, i cannot remember the name, but my friend had this with her first pregnancy. she was told the same thing, that it is very common and the cysts usually go away on their own, and it's nothing to be concerned about. however, she was worried, after being told about cysts on the brain so worried herself sick anyway. everything was fine, and when she went back 8 weeks later for another scan, they were gone. she said she wished they never even told her.
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