So, we just got to meet with the neonatologist about little Jeremiah. We were hopeful that he had "wet lung syndrome" but it turns out that is not the case. The x-ray this morning confirmed that it is respiratory distress syndrome, and unfortunately there is no guess how long it could take to get better. They are leaving him on CPAP at least another day, if the x-ray looks better in the morning then they'll move him to a nasal canula. At least on that we will be able to hold him. But, they said to expect him to still need oxygen for a few more days. Apparently he gets so agitated at simple things like a diaper change that t hey have to up his oxygen just to calm him down to get through that. So, he'll be on oxygen until he can get through normal daily activities without needing the extra help.
He's also dealing with some jaundice. Apparently he's got the "normal" jaundice issues but also another jaundice issue. Apparently my blood type and his blood type clash, and my blood that crossed the placenta is killing his red blood cells and thats making things worse. The dr said that there was nothing we could do about that ,but it does mean at least a couple of days under the lamps.
The POSITIVE news we heard this morning is that they upped his feeding. He's now eating 1oz every 3 hours (by feeding tube) so thats good news. My milk still hasn't come in, so he's getting tiny bits from me and formula for the rest. But at least he's tolerating food!
So the dr said we're looking at probably 3-4 more days at least before Jeremiah will be able to go home, but that all depends on how he does. The girls are loving having Nana and Poppa around and are being sufficiently spoiled. They're coming to visit me this afternoon in their bumble bee costumes, I can't wait to see them.
I hope everyone has a great halloween!!
Re: Update on Jeremiah...not the news I hoped for :(
Oh no :-(
At least it sounds like an end is in sight though! I hope your whole family can be comfy and cozy at home by the first of the week! I know seeing the girls in their costumes will brighten your day!
I am sorry to hear Jeremiah is not doing as well as you hoped for, but at least he is in good hands and the doctors know what they need to do to get him ready to go home with you. My thoughts are with you all!
I'm sorry you didn't get the news you were hoping for
It sounds like in a few days though he'll be much better. I know it's so hard to see them like that, but it's amazing how quickly things change and how strong they are. Eli was on a CPAP for a couple of days too, and then had a nasal canula. That was a great day! And he had jaundice too, but just had a few days with his bili blanket. They look like little glow worms!
Stay strong and hang in there! He'll be home in no time. And just keep giving him whatever BM you have, every little bit helps. I know that's very frustrating, b/c you want them to be getting all the BM they can. But he'll be fine and it won't be long before all of this is a distant memory!
I'll be keeping you guys in my prayers!
I hope he gets better soon! Poor little guy.
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I'm really sorry that you didn't get the news you were hoping for, but it does sound like he is making some progress each day. I can't imagine how hard it is not being able to have him home, but it's for the best. You are all in my thoughts.
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