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Preemies
Teagens now having seizures
My day started out amazing. I went and cleaned my car out, went and looked at some dresses and then got a call from Teagens nurse saying they were gonna discharge her today! (shes only 34 weeks) she had been eating over an oz of breastmilk, keeping her temp up and a little over 4 pounds so she had been doing great, hadnt had a brady in a few days either so when I get there im changing her diaper and getting her dressed and she starts to have a seizure and stops breathing, this had never happened before so as her nurses and doctor are making sure shes okay and sucking formula (they ran out of milk) out of her belly I just lose it and start crying. She had 4 seizures while I was there so they put her back in her isolette, ivs back in, and they think she might have a bacterial infection. They held off on all her feeds for the day. I just dont understand how babies can be great one day and a few horus later all this happens. Im so exhausted and frustrated cause Im her mommy, im supposed to be able to make her better and I cant but im thankful that shes where she is because I know her doctors and nurses will take amazing care of her.
Have you girls had any experiences like this?
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Re: Teagens now having seizures
*sigh* Unfortunately it's all part of the preemie roller coaster, and I think everyone can relate to being told at least once that it's almost discharge time only to be sent back to square one the next day (or next hour, even). *hugs* I hope they get everything figured out quickly.
BTW, totally unrelated, but every time I see your siggy I get all sentimental...something about the pose of your DD looks like one of my pics of our DD in the NICU.
Im starting to learn about this roller coaster hah im definatly glad it happened while she was still there rather than in the car ride home or at home where I wouldnt have known what to do. Im trying to just keep positive and not so stressed until we get the culture result back in 2 days.
I am so sorry!
We did not experience the seizures but DD was scheduled to be discarged in a couple of days when she had blood in her stools. It turned out to be NEC and we were so upset. It was not until later I stopped and though if we had gotten discharged and blood was in her stool apedi may have just thought constipation and maybe a stiff stool caused the bleeding and then we would not have been able to get an xray almost immediately to see the shadow that was the suspected NEC. The pedi might have just sent us home and then her bowels would have started to die and the abrupt NEC could have killed her. BUT we were still under the excellent care of the NICU.
Anyway again I hope LO is monitored well and it is explained and non lifethreatening and she is back on the path of discharge and y'all can end the rollercoaster of the NICU.
I dont think i was upset about her not coming home as much as i was not knowing what was wrong with her, I thought she was doing so well and then I was so shaken by seeing her have a seizure and not knowing what to do. She has her own nurse right just to really moniter her and as far as I know she hasnt had anymore seizures or bradys since this afternoon. Im just praying its not an infection!
Although my son was not near the point of discharge at the time, I can relate to being in the room when something unexpectedly really scary happened and how helpless and awful you feel. My son was only alive for one week when all of a sudden the bells started going off and I see his heart rate at 300bpm...yes, 300bpm. Every single doc and nurse in the NICU ran into his room as I stood in the corner shaking. I thought he was having a heart attack and going to die. Turns out, he has a minor heart condition where he has episodes of rapid heart rate (called SVTs) that is now completely controlled with meds. But I will never forget that first time it happened.
I'm sorry for this setback and your LO will be in my thoughts and prayers:-)
We didn't have seizures but we did have a bacterial infection that went septic, then into the menenges and then found to be in his knee and leg the week of supposed discharge (bought himself another 42 days right there). It was scary, I remember walking in talking to the nurse who said everything was going great, then hearing the non stop alarms, my baby who was just graduated to cannula had to be intubated. Hopefully she was started on antibiotics right away as a precaution and it will be under control quickly. I know every infection, baby, and NICU are different but if it is an infection it may mean several weeks of antibiotics, and take it from a woman who has tried every angle, she will need to remain in the NICU for the entire course even after tests come back clean and she is breathing and eating well.
Good luck and thoughts and prayers are with you!
ETA: I mean that they can't switch to an at home antibiotic, not that you would want to stop the course early! Obviously baby's health comes before all else.
Sending lots of T and Ps your way.
My DD Lauren, had a brady just an hour after rounds... and that day in rounds they said she could go home. then.... (her sats dove down to 30!) it was awful)....
Long story short... after a big work up...tests galore... the doctor finally believed me that she needed some oxygen. Lauren went home on oxygen for 3 months. She is doing great now. I'm sorry your LO isn't feeling well. The one thing all of the NICU taught me was they get sick super fast...but as well, make that turn to getting better quickly too. GL!