- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Georgia Babies
Please help find Miabelle a donor
Hi ladies. I am not a frequent poster and I hope I do not offend anyone by using this board to send out a message for help but I know that the Atlanta bump/nest/knot community has a lot of wonderful/generous people who might consider helping a family in need.
This is Miabelle. She is the 1-year-old goddaughter of some of my very good friends and she has been diagnosed with a very rare blood disorder. Her parents have been told that without a bone marrow transplant the disease it fatal - she needs a bone marrow transplant to save her life. This has all transpired since Feb. 2011 - in just over a month!
I urge you to consider joing the national bone marrow registry or please send this story to your family and friends to ask them to register. All you have to do is a very short online registration and you will be mailed a kit to swab your cheek cells. The chances are 1 in a million to find her a match, so they are doing everything they can to share Miabelle's story and register as many people as possible in the national bone marrow registry.
Time is critical and a donor needs to be found quickly and I wanted to send you Miabelle's story to increase awareness of the family's need to have as many people as possible join the national bone marrow registry.
I know that there are so many children in the world that need help, but this family is facing the prospect of losing their daughter. A few minutes of your time could help save her life. Please consider helping Miabelle.
Miabelle's Blog - https://miabellegillier.blogspot.com/
Miabelle's online Marrow Drive - https://join.marrow.org/MIA
A Letter from Miabelle's parents
Date: Tue, Mar 15, 2011 at 12:32 AM
Subject: Our daughter, Miabelle, needs your help for a chance to live!
To: Olivier Gillier <olivier_gillier@ml.com>
Subject: Our daughter, Miabelle, needs your help for a chance to live!
To: Olivier Gillier <olivier_gillier@ml.com>
Dear friends:
As most of you by now know Miabelle, our 12 month old daughter, has been diagnosed with a very fatal condition called HLH/FLH. The doctors at Cincinnati Childrens' Hospital, the leading hospital in treating this disease, have agreed that they need to proceed fast to giving Miabelle a bone marrow (Stem Cell) transplant in order to survive this rare immune disorder (HLH/FLH). Currently we have not found a proper match yet. However finding one quickly could save her life. Although chances are 1 in a million to find a match, we need to do all we can to find a single bone marrow donor for her. The disease is currently stabilized with chemotherapy, yet has reached the central nervous system. Without new bone marrow she will most probably not survive for long once the chemo is terminated.
Registering to see if you could be a match is as simple as a swap of the inside of your cheek. Nothing more. Although many people are concerned that a bone marrow is onerous, today's technology has minimized considerably the tedious experience of bone marrow donation. The retrieval of stem cells (bone marrow) is performed by a medical machine that takes blood and filters it for the required cells. It does not need to be invasive, it can be as simple as a blood donation.
Vanessa and I are doing an online Marrow Drive through our blog https://miabellegillier.blogspot.com/p/bone-marrow-drive.html . It only takes 5 minutes to register online, your receive a package via fedex at home to take a cheek swap (again 5 minutes), return it and done. I did it on Friday, it was painless (its a cheek swap), easy and fast. If you are a match a nurse calls to follow up with you and explain the process in more details. Registering does not mean you commit, that decision is made later if by good luck you are a match.
Our webpage details the procedure. We hope you all realize our desperate and urgent call for your help and the difference you could make in potentially saving our baby's life or someone else's.
Please see her history and register through our blog https://miabellegillier.blogspot.com/p/bone-marrow-drive.html . Time being of essence. Let me know if you have any questions or concerns.
Both Vanessa and I thank you in advance for your help. Feel free to forward this email to anybody who you think could help!
A few minutes to save a life!
Sincerely,
Vanessa and Olivier
This discussion has been closed.
Re: Please help find Miabelle a donor
I'm sorry Miabelle is going through this! I am already on the bone marrow donor registry and I would be honored to donate if I ever get the call. This is such a worthy thing to do.
I urge everyone to request the kit and be added to the registry. You could save someone's life!
Abigail Taylor 09.18.2008
Kit ordered!
Ordering my kit too.
Thank you for sharing this.
I just went online to order mine and I'm denied as well
I pray this little girl gets a successful match soon!!
BTW--this is the first time I tried to become a donor and I'm sad that I can't. Super close family friends of ours needed a bone marrow transplant for their son. Luckily the little boy's brother ended up being a perfect match otherwise we were all getting in line.
DD- 9
DS-6
c/p- April 2016
missed m/c- 6w5d; discovered 8w2d- September 2016