CVS - Didn't collect enough of the Villi to be sure to get results

boyds1414 · March 2011

I recently had the CVS procedure done and afterwards the doctor said he was only able to get 10 (mL - I guess) when he actually needed 15. He wasn't sure if he would get any results or not. Has anyone else had this happen?

Gummybear · March 2011

Oh i would be so angry! My Dr. warned me ahead of time that if he didn't get enough he would go back in, and he measured right there in the room before they wiped the brown stuff off my belly. Will they repeat the procedure?

boyds1414 · March 2011

Well he asked me if I wanted to procedure repeated but of course he reminded me that my risk of miscarriage is still there and that he thought he might have enough but just couldn't be for sure. I didn't want to risk having the procedure done again when they might already have enough to get results. I'm just waiting all week now, because he said they didn't get enough to get FISH results. This is going to be the longest week. My chances were 1 in 82 for DS and I'm only 26 years old!!

Gummybear · March 2011

Yeah I had to wait extra because they actually did not have enough to get flash results for a specific (random) thing we were testing for, since that lab got the "leftover" sample after the FSH and full chromosome testing was done. It's awful!

I am thinking of you! Was it bloods or the measurements that was off? I had a NT of 3.2 which jacked up my risk. I am old though. Everything was fine though! I know that this comment is annoying because when you are in the moment, it's so stressful, but there is a 81/82 chance all is perfect. ((hugs))

boyds1414 · March 2011

I think it was my blood work that increased my chances. The scan came back pretty normal. Thanks for your kind thoughts!!

julygal · March 2011

That would be frustrating. We had an amnio done with our son (about 2 years ago) because in our 2nd tri anatomy scan a marker came up that gave us a 3:10 chance of DS. In our case the dr got enough fluid and the week wait was still agonizing, so I can imagine the wait especially with not knowing if there was enough sample would be excruciating. Just focus on the positive as hard as it is. We had a 7:10 chance our son would be fine and he was. You have better odds working for you! Good luck.

boyds1414 · March 2011

Thanks! That's reassuring to hear

LauraLovesJon · March 2011

I had that happen and I ended up repeating the procedure, it was so frustrating.

boyds1414 · March 2011

I almost wish I had went ahead and repeated the procedure now.

rachael898 · March 2011

I think it must depend on the place that you are going to. I live in southern NH so I have the luxary of going into Boston if I there isn't an appropriate provider up here in NH. The place I was going to go in NH wouldn't see me until I was almost 13 weeks along when everything on their website said they do it 10-14 weeks which is the benefit of doing CVS over an amnio. They said it was because they may not get a big enough sample and have to do it over again. I called my OB and got a referral to go to a bigger hospital in Boston, MA and they took me at 12 weeks, which they said they could have done it at 10. When I met wtih the Dr and my Genetic counselor they explained that it will take 7-10 days for results but if they don't get a big enough sample it could take up to 4 weeks because they have to wait for everything to grow. The other drs office was still telling me they won't get a big enough sample and they would have to do it over again but the bigger hospital said they wouldn't have to do that it would just take longer. Long story short I think it just depends.

What ended up happening to us is that they had enough sample. It took the full 10 days but we had all the chromosomes looked at and then the genes looked at because we have a 1 in 4 chance of our baby having Cystic Fibrosis. You may get your results sooner because they would just be looking at Chromosomes for DS but if they think the sample size is small maybe they can let it grow longer and you'll still be ok but just have to wait a couple more days. It's very scary right now but it's all going to be ok. We had a 1 in 4 chance and we are having a healthy baby girl. I feel like my prize for going through everything is not only my piece of mind but also getting to find out what it is a bit earlier. Definitely not worth going through for gender but something to be positive about and when you find out you are having a healthy baby you can go crazy and buy all kinds of baby stuff. After all of that I needed to let myself be excited and now my house is pink crazy! Sending you lots of positive vibes. Sorry this was so long

boyds1414 · March 2011

I'm so happy for you!! I would imagine you did go crazy with the pink

I plan to do the same if I get the all clear. Thanks for sharing your story... I am relieved to know that they might still be able to get a result even though they didn't get a large sample. Good luck with the rest of your pregnancy!!

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