If your dx is genetic, will you have more?

Calypso312 · March 2011

DD's condition is genetic which means there is a 25% chance with each pregnancy that the child will be affected. DH and I have been discussing lately weather or not we want to try to have more children. We still haven't made a decision. I'm kinda hoping God makes the decision for us! Have you thought about it? What have you come up with?

Justinlove · March 2011

Our situation is different in that DD's condition is due to chromosomes, but it was a "fluke," Both DH and I have been tested and neither of us have the translocation that DD does so the geneticist told us that we do not have a greater change than anyone else of having another child with DD's condition. Had we found out differently, DD would be a one and only.

mskolman · March 2011

Same as PP, son's condition was a fluke. Both my husband and I were tested for the deletion and neither of us have it. We didn't have a greater risk than the general population for it to happen again. We are pregnant with our second who appears to be healthy. It is still scary. I saw one family that had to boys with our son's same syndrome, so I wasn't counting us out. If we would have found out that we had a higher risk for having a kiddo with the same syndrome, we probably would have looked into other options.

jessababe85 · March 2011

Calypso312:
DD's condition is genetic which means there is a 25% chance with each pregnancy that the child will be affected. DH and I have been discussing lately weather or not we want to try to have more children. We still haven't made a decision. I'm kinda hoping God makes the decision for us! Have you thought about it? What have you come up with?

It also means there is a 75% chance your future children won't be affected Smile Like PP's my son has down's by a total fluke, but we still haven't said yes or no to more children. If it's God's will it will be so.

MAtoNC · March 2011

Our son's genetic anomaly is inherited. We were actually lucky to learn that he inherited the exact same anomaly that my husband has. This means that since my husband is healthy, that DS will likely be healthy, too. He has developmental delays, but there is no way to tell if they are in any way related to the anomaly. We actually think they aren't.

DS was lucky to inherit the exact same anomaly, but a future child might inherit only a part of it, which could actually be disasterous. For this reason (and the fact that I am 41 years old), we have chosen to be one-and-done.

I feel guilty because I should feel totally blessed (and I do), but I also feel sad that DS will not have a sibling. Being a "sister" was such a big part of my childhood. I wish that DS had that. He will not.

mommyof4boys · March 2011

Chris' condition is genetic and we know there are cases where it was a fluke and cases where it was inherited. We were tested a few weeks ago to see if it was inherited; we will learn about that soon. We were done before we knew that there was something going on with Chris. Having 4 kids did was our decision maker. I would have loved more but we couldn't aford it where we live and pregnancy doesn't get along with me.

REOM · March 2011

We are trying to decide this now. My DD's dx is genetic, and we have found out that my H has it also. However, he was diagnosed at age 32, and has lived a perfectly happy, healthy life. Of course, a future child might not be so lucky... But having children is always a risk. We live in NJ, where 1 in every 64 boys is autistic (or something like that). That said, we haven't yet decided.

SwanyGirly911 · March 2011

We have recently decided to be one and done. We have a 60% chance of having another child with the same condition as DS. It is the 40% chance of having a perfectly healthy child that made it hard to come to this decision though. I always wanted a large family. We simply cannot afford all of the additional costs that comes with having a special needs child again though.

twoasone1 · March 2011

SwanyGirly911:

We have recently decided to be one and done. We have a 60% chance of having another child with the same condition as DS. It is the 40% chance of having a perfectly healthy child that made it hard to come to this decision though. I always wanted a large family. We simply cannot afford all of the additional costs that comes with having a special needs child again though.

This is really weird. But this is me (twoasone) that posted this. I am not sure why the bump has a different name for me all of the sudden. This is really weird.

Assembly_Reqd · March 2011

I want 1 more. DH is still riding the fence.

We are a "fluke" too and have no more chance than any one else of having a kid with the same deletions. Deep down I think having a kid with some other deletion or a trisomy is probably a pretty high chance. I just can't imagine that I would actually get lucky enough to have a "gentically perfect" child. I don't know what I would do if I force the issue, we got pregnant again and ended up in a similar or worse boat. I don't think I would ever forgive myself....

adge1119 · March 2011

Assembly_Reqd:

I want 1 more. DH is still riding the fence.

We are a "fluke" too and have no more chance than any one else of having a kid with the same deletions. Deep down I think having a kid with some other deletion or a trisomy is probably a pretty high chance. I just can't imagine that I would actually get lucky enough to have a "gentically perfect" child. I don't know what I would do if I force the issue, we got pregnant again and ended up in a similar or worse boat. I don't think I would ever forgive myself....

i so feel the same way. we are a fluke--at least our dr's believe we are; we are just waiting for our test results to come back.

i really want another child. i think it will be good for my son to have a sibling but also good for us as a couple and a family. we just haven't decided if that will be biologically or through adoption. i think either way we will have another.

JaysonandKristin · March 2011

We will likely never know the cause of DS' condition, but there are some schools of thought that call it genetic. That said, we're pregnant again. I know plenty of families (affected by DS' condition) who have gone on to have "typical" children. There are a few (2 I can think of off hand) that have had 2 or more children affected, but I am talking about families with much more extreme cases than DS' will ever be.

So far so good this pregnancy. I feel 180 degrees different this time around, and that's a great sign. DH and I are even discussing having a 3rd.

Soapstone · March 2011

We are assuming our daughter's hearing loss is genetic. If the testing shows that it's Connexin 26 mutation, we would have more. We will not if it's Usher Syndrome.

Sobachka · March 2011

I wish I could have more, but I won;t because of some many reasons. Maybe in 5 years I could adopt an older child, but again, I just cannot plan for anything anymore

Caroline&Stephen · March 2011

Soapstone:
We are assuming our daughter's hearing loss is genetic. If the testing shows that it's Connexin 26 mutation, we would have more. We will not if it's Usher Syndrome.

We are a Connexin 26 family. We decided to have more & we are expecting Baby #2 this summer.

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