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Preemies
sandsandmore
member
NEC experience?
sandsandmore
member
in Preemies
Has anyone on here had any experience with NEC? We might be dealing with this right now. But I'm too terrified to do too much googling.
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Re: NEC experience?
I am having connection problems so I could not check out the link. I will just write so stuff and Hope it helps. NEC was scary for us.
My "24" weeker was diagnosed with NEC a few days before we were suppose to be discharged (so glad it was caught). DD was having blood in her stool. She didn't really have any other symptoms. She did have a shadow on her xray. We caught it very early...very lucky of us.Our daughter was about 3 months old so that was actaully a little more rare. My understanding is that it is more common within the first month or two of life. It as you know is a bowel wall infection (though I could be remebering wrong over 5 years ago). The infection can kill the bowel wall and weaken it plus the gases from the bacteria and bowels can cause the dead bowel and bowel walls to rupture. If rupture occurs surgery is needed and usually a second surgery to reconnect bowel and remove the ostemy bag.m DD was xrayed every couple of hours. they also stopped all oral feeds and had a small stomach pump type thing to keep digestive juices from traveling down. her feeds were stopped for almost2 weeks during antbiotic treatment. She did get a lil distended but we were very lucky she never had any bowel rupture which is what often happens. It is life threatening and the complications can be life threatening and serious as you may know.
I am sorry you LO is having to fight this.
Definitely don't google! NEC is a very scary issue - but it sounds like they caught it early for him, which is good. I've been following your blog since before you had the babies, and I'm sorry to hear about this recent development.
Andrew had a "NEC scare" soon before discharge. (He was post-term, so like the pp'er said, it is rare at that GA) Anyway, like your son, they caught it early and he was off feeds and on anitbiotics for 7 days. They were never sure if it was NEC - but he was definitely sick with something and the xrays looked weird. Soon after they started antibiotics he was back to normal, but they treat NEC very seriously and treated him as though he had it for sure (which I appreciate, even though it bought us almost 3 extra weeks in the NICU).
I hope that things rapidly improve and that this is just a temporary setback. Hang in there!