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Hello

miafromabmiafromab
in Preemies

I am the mom of a now 5 year old micropreemie. DD was born @ 23 weeks 6 days weighing 1 pound 4 ounces measuring 12.75 inches. She was an emergency c-sec due to severe pre-e at 23 weeks. She was in the NICU for 108 days. She is currently an Ambassador for our local March of Dimes.

Conditions in the NICU: BPD, chronic lung disease, PDA, NEC, ROP, IVH grade 1 bilaterally, Laser surgery for ROP right eye twice left eye once, hypotension, many blood transfusions, ventilator, oscillator type vent, vapotherm, ng tubes, sepsis

Conditions after NICU d/c: severe nearsightedness/ glasses at 10 months, weight gain, developmental delays, growth delays, speech delays, endocrinology

Conditions still: speech issues and severe nearsightedness  

I wanted to join the board and say hello. I am by no means an expert but have experienced alot in the preemie world and would be glad to answer questions or give support.

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Re: Hello

  • njdcgirlnjdcgirl member

    Welcome!  Many ladies on here are doing the March for Babies walks, and we have a few other ambassador families on here too!

    It's great to "meet" someone whose preemie is a little older, and to see how she is doing.  I'm glad to hear that things are going well - sounds like it was a long road.

    My son was a 23w5d-er who is now almost 9 months actual (5 adjusted).  He's doing great at home (after a long 147 day NICU stay) except we are battling our first cold.  No fun, but so far he's handling it ok.

    Again, welcome!  Hope to see you around!

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  • Kate621Kate621 member
    Welcome! Sounds like your LO is doing well now. Its nice to see another micropreemie mom here. Well, not nice that you have to be here, but you know what I mean. Smile
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  • lemen99lemen99 member
    Welcome!  It sounds like your LO has overcome so much. That is really amazing. :)
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  • CLAYLIOVERCLAYLIOVER
    Welcome! I agree with others, its nice seeing a micropreemie all grown up! My girls were also in the NICU for 108 days!
    3 miscarriages, Infertility, & Premature Birth Abigail and Adalynn born @ 25w1d Lilypie Second Birthday tickers FAQ: Resources for New NICU Moms
    FAQ: My Friend Just Had a Preemie, How Can I Help?
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