- Pregnancy
- Baby & Toddler
- Parents
- Getting Pregnant
- Baby Names
- Product Reviews
-
Registry
- Community
-
More
Want a personalized experience?
Download the free app
Infertility Veterans
Total PW: The rollercoaster continues
You are all probably getting sick of me talking about this. Tell me to shut it if you are but...
We have hope!! This crazy rollercoaster is swinging up for now. My OB had given me the name and number of the pharmacy that currently compounds their p17 and I decided to call them and see when they would stop producing the drug and how long it would be good for thinking that maybe I could stockpile to save some money at least.
Well, at first he thought I worked for the pharm company and was trying to get info. Once I told him my story he was super helpful. For now he can continue to compound it because it's suspended in sesame oil and not castor oil like the patented one. He also said he'd be willing to play with the dosage a bit to go around the patent for us too. It's good for 90 days only but once we find out we're pregnant we can start ordering in advance and stockpiling just in case.
I still need to talk to my OB and MFM about it but things may be looking up.
TTC with severe MFI since 9/08
IVF w/ ICSI #1 May/June 2010= BFP twins
Callan George and Bennett Charles born and died 11/7/10
FET #1 April 2011= BFN
FET #2 July 2011= no transfer because my lining sucked
FET #3 February 2012= BFP! 1st beta 9dp5dt=314 2nd beta 11dp5dt=977 1st U/S 3/20 Twins- Heart rates of 111 and 138
Living After Losing
Callan George and Bennett Charles born and died 11/7/10
FET #1 April 2011= BFN
FET #2 July 2011= no transfer because my lining sucked
FET #3 February 2012= BFP! 1st beta 9dp5dt=314 2nd beta 11dp5dt=977 1st U/S 3/20 Twins- Heart rates of 111 and 138
Living After Losing
This discussion has been closed.
Re: Total PW: The rollercoaster continues
TI, IUIs, IVF = c/ps and BFNs
::: Married June 2003:::
TTC #1 since: Aug. 2008
Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
Tx History: IUI 1&2= BFN
IVF# 1 W/ICSI= BFN
IVF# 2: cancelled d/t no response
IVF# 3= 1 egg retrieved=immature/not viable
IVF# 4= c/p
***CCRM ODWU***
Found DHs BT and Me-decreased blood flow to uterus
Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
***New RE***
DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture.
IVF# 6: (OE/DS) cancelled
IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015
http://icanhazbabyz.blogspot.com/
PW all you want
great job being your own advocate and
to the pharmacist willing to help you out
i hope this all works out and you can get exactly what you need for your pregnancy
Worrying does not empty tomorrow of its troubles, It empties today of its strength. ~Corrie ten Boom
Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow. ~Mary Anne Radmacher (thank you beadinglady)
It's been a long journey. TTC since 9/06. multiple IUI's and IVF's and 4 m/c's. IVF#3 = BFP, twins, induced at 34w6d due to baby b passing away (no explanation). Delivered on 35w1d, Baby A - baby girl, and Baby B - baby boy, our little angel.
MTHFR A1298C & C677T, Immune Issues and Factor II
That is GREAT news! I am happy you are finally getting some answers that you deserve.
TTC#1 since 2004
LGBT
4 cycles @ home with known donor - BFN
RE un-medicated IUI cycles # 1-7= BFN
NEW RE Clomid 50mg/ Ovidrel/ IUI #8 BFN
Took long break
Nov 2009 - Clomid 50mg/ Ovidrel/IUI #9 = BFP
Beta 12/4 - 10...Beta #2 12/7- 28 Beta #3 12/9 - 80!
1st sonogram 12/28 - slow hb and growth
m/c 1/1/2010 Courtland 8w0d
Nov 2010 cycle cancelled - polyp removal/hysteroscopy
April 4 2011 - IUI #10 BFFN
July 5, 2011 - #11 BFFN AMH .62 Boo
excellent.
and your not a PW!
TTC #2 since June '08
~*DD 10.21.07*~
dx unexplained
IUI #1-4 BFN
IVF#1 June 2011 BFN
IVF#2 Dec 2011
Beta#1 12/21 : 812 Beta#2 12/23 : 1634
EDD 8/25
*PAIFW/SAIFW*
07/14/97 - Stillborn twins at 22 weeks
12/20/99 - Miscarriage #1 - 11 wks 4 days laproscopic surgery due to rupture of tube
07/01/01 - Divorced
05/30/09 - Re-married to a wonderful man!
11/11/09 - Miscarriage #2 - 10 wks 3 days, D&C
Dx: Unexplained
07/30/10 - 10/19/10 - IUI #1 - IUI #4 clomid cd2-6 + premarin cd7-13 + HCG Trigger=BFFN's
11/10/10 - IVF #1 Start stims ER#1 11/22, ER #2 11/24, ET 11/29=BFFN
03/14/11 - IVF #2 start stims, ER-03/26/11, ET-03/31/11, beta 04/08/11 = BFFN
05/16/11 - Hail Mary Cycle - Inj+TI =BFP!! 06/08/11 Beta #1 71.8, 06/10/11 Beta #2 201, U/S 6/20-1 sac. U/S 6/28 sac and hb of 118!!
TTC since 2008 dx PCOS & MFI
Clomid/Femara no "O"
IVF #1 BFN
FET #1 cancelled for biopsy
FET #1.2 c/p, July 2012 c/p
IUI #1 & 1.2 canceled
IVF #2 ER 12/1, Freeze all due to OHSS
FET #2.1 cancelled due to DVT risk, FET #2.2 Jan 2013
my blog
Yay, that's grat news!
Dx PCOS 2003/high fasting insulin/clotting issues DH Dx with low sperm count, motility and morphology. Varicocele repair (11/1/2010)
2/2011 - Confirmed no improvement - On to Donor Sperm
4 failed IUIs in 2010
IUI#5 and 6- with DS, BFN
Final IUI - Lucky #7! IUI with DS - 20.Jun.2011 - 21.5 mil motile! Not so lucky - BFFN and the end of our IF journey....
Waiting for our family to be complete through Adoption - May 2012 - Hoping our baby finds us soon!
That is excellent news! I was wondering how some of the pharmacies were getting around it. Both of the pharmacies I previously ordered 17HPC from said they couldn't make it anymore. But, they both used castor oil.
Good luck, hon! I'm so glad you finally got some good news!
~SAIF/PAIF/Everyone Welcome~
Me= 37 and DH = 41
Dx: DOR, Endo, APA+ (really high beta 2 glycoprotein antibody and high everything else tested), heterozygous MTHFR mutation, positive for lupus anticoagulant, high FSH, low AMH and both tubes blocked (per HSG on 3/8/11)
IVF #1 - long lupron (with HGH, intralipids, lovenox and BA); 4 retrieved, 3 fertilized; ET 2 blasts and 1 frozen = BFN
IVF #2 - a version of antagonist with EPP (with HGH, intralipids, lovenox and BA); 6 retrieved, 4 mature, 3 fertilized, 2 blasts and 1 frozen blast transferred on day 5 = BFN.
IVF #3 April was postponed to May, May was canceled. June/July was canceled. Had a cyst aspiration and then began IVF #3 in August. ER on 8/22; ET on 8/24 with AH. +HPT on 9/5. Beta #1 (11dpo) = 3; Beta #2 (15dpo) = 29; Beta #3 (17dpo) = 60; Beta #4 (19 dpo) = 118. Heartbeat at 6 weeks 6 days =132. Lil is here!
TTC#2: Trigger + TI = BFN; Clomid + Trigger + IUI = BFN.
IVF #4: BCP + MDLF + Lovenox = 7R, 1F = Transferred 1 6-cell embryo on day 3 = BFN
IVF #5: MDLF + Lovenox = 4R, 1F = Transferred 1 10-cell compacting embryo on day 3 = BFN
IVF #6: (New RE): Long Antagonist November 2014 (transferred two 8 cell grade 1 embryos and froze one blast) = BFN
FET#1: BFN
Moving forward with Adoption 2017!
ditto wormsie.
I'm so glad for you!
Hey! I'm meeting with an MFM at the University of MD and will specifically be asking about what they think about Makena and it's price and how to get around it. A Dr. there was quoted in one of the early articles so I'm sure she's aware of the situation and I hope they have options for patients such as myself.
I don't believe that insurance can deny you an FDA approved drug because of cost so I'm assuming that you're not covered for Makena becaue you lost twins, right? That's why I'm not covered. I CAN'T go through another loss before I get coverage. I just CAN'T.
TTC Since 10/08 4 IUIs=BFNx4
IVF#1=BFP!! Twins!!
Bradley and Billy born and lost on 2/2/11 at 19w2d due to pPROM/PTL. I miss you, little angels.
IVF#2=BFN
IVF#3=c/p IVF#4=Empty Follicle Syndrome; 1 mature, fertilized, & made it to blast. 5dt of "the lone ranger" on 9/6. Please stick, little one!
beta#1 3/21 (14dp3dt)=413, beta#2 3/23 (16dp3dt)=785, u/s 4/11
EDD 11/25/12
**SAIFW**
My insurance plan simply doesn't cover drugs at that price level. I don't qualify for Makena's assistance program because of the twin loss and our income level is just over their cut off.
I completely feel you on not being able to go through this again ever for any reason. I also can't live with myself if I don't take the drug during the next pregnancy and something goes wrong. It's a crappy place to be for sure.
I hope you get some good answers and a good plan at the doctor.
Callan George and Bennett Charles born and died 11/7/10
FET #1 April 2011= BFN
FET #2 July 2011= no transfer because my lining sucked
FET #3 February 2012= BFP! 1st beta 9dp5dt=314 2nd beta 11dp5dt=977 1st U/S 3/20 Twins- Heart rates of 111 and 138
Living After Losing
Forever our's October 17th 2012
Daycare is SO exhausting!
Blog
I wish it lasted longer than 90 days, I would be stockpiling it for sure.
I hope it all works out for you and this is one less worry you have to deal with!
Me: PCOS, Blood/Immune Issues DH: Low all 3
Jun.- Sep. 2010 IUI#1-#3 = BFN
Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
Sep. 2011 = Surprise BFP = C/P
Feb. 2012 = sFET #1 = BFN
Feb.2012 = Hail Mary IUI #4 = BFN
April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
Baby B's heart stop beating at 9 weeks 5 days
Our little miracle baby is a boy.
Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
"What the heart has once owned and had, it shall never lose." - Henry Ward Beecher
SAIF/PAIF Welcome
Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
YES.
The Conception Craze
1/2009- TTTC
After 7 rounds of clomid and HcG, Three failed IUI's with an ectopic pregnancy, two shots of methotrextate, ER visits, breaks, low (3%) morphology One IVF cycle (lupron, gonal-F) that ended in another ectopic, more methotrexate, A Lap to disconnect both tubes, remove endo and a hydrosalphinx, . . .we are finally expecting TWINS from FET#1!
1.11. 2011: Beginning FET cycle!
3.11.11- FET! (DH's birthday!) 2 blasts transfered!
3.20.11- BETA #1 BFP!!! 272! (9dp5dt)
3.23.11- BETA #2 1346!!! (12dp5dt)
4.8.11- U/S #1. . TWINS!!! . . .TWO BOYS!
9.10.11-My beautiful Boys arrive unexpectedly at 28 weeks, 6 days.
IVF#1 Oct 2009 (CCRM) - BFN
IVF#2 March 2010 - Poor response/cancelled
DE IVF#1 Aug 2010 - BFN
DE IVF#2 Dec 2010 - Transferred 1, 2 frozen - BFP!
TTC#2 FET Jan 2013 - Transferred 1 - BFP!