Special Needs

WDYT? regarding seizures.

Yesterday I was nursing E and his eyes were closed and I'm pretty sure he was eating and sleeping IYKWIM?  Well all of a sudden his head started shaking so I started yelling his name.  He didn't stop, so my bf quick got up and grabbed him and woke him up and he stopped.  When I got home from work today I jokingly asked if it happened today and my boyfriend said that it did.  He said the same thing happened as yesterday, that when he woke him up it stopped.  I just about started to cry.  I was hoping this was all in the past.  Does this sound like a seizure though?  It was just his head that was shaking, not his body. And when we would wake him up from "sleeping" it stopped. So conveniently he has an appointment with his neurologist on Wednesday so we'll obviously let him know.
 
this was also posted on 3-6 by accident.
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Re: WDYT? regarding seizures.

  • Do you have a camera that takes video?  We do, and we used it to take video of my son seizing.  It was really helpful for our neuro to decide what type of seizure it was. 

    It could be a seizure, but then again sometimes when LO was a little younger he did some strange movements in his sleep.  Since it sounds like your little guy has a history of seizures then I would document (time, what he was doing before, how long it lasted, etc) and record them if possible.

    Good luck! 

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  • After we woke him up he went back to nursing and I had the video camera right by my side waiting!  It probably lasted less than 10 seconds.  When it happened today my boyfriend said he woke him up immediately, so only a few seconds again.  Do you think we should tape the next time it happens or snap him out of it?  I mean, he does switch in his sleep, but this is totally different. 
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  • It honestly doesn't sound like a seizure to me.  I work with adults with developmental disabilities and I see dozens of seizures a week.  You're not able to "wake" them up from a seizure.  It's impossible for you to wake him up from one but is is possible he's having them and waking up on his own when it's over.  However, 9 out of 10 times my clients seizures make them really tired afterwards and they sleep for a while once they come out of one.  They also are out of sorts and can't function properly immediately following a seizure.  Could your son be having nightmares?
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  • I'm confused...Does he have a history of seizures? You say he already has an appt with his neurologist so I'm assuming he has a history of seizures... What you are describing sounds almost like a nerve issue (like spasms) that happen when he falls asleep. Does it ever happen when he's awake? It doesn't sound like a seizure to me either but then again a seizure can present itself in so many ways...
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  • imageMakinroom4baby:
    I'm confused...Does he have a history of seizures? You say he already has an appt with his neurologist so I'm assuming he has a history of seizures... What you are describing sounds almost like a nerve issue (like spasms) that happen when he falls asleep. Does it ever happen when he's awake? It doesn't sound like a seizure to me either but then again a seizure can present itself in so many ways...

    He had a stroke when he was born and was having seizures on and off until he was 4 days old.  He hasn't had one that we are aware of since then.  When he had the seizures he was so little that they seemed like little hiccups to me, so I don't know what seizures are like in older babies.

    No, it hasn't happened at all when he is awake.  I'm happy to hear that a few of you don't think they are seizures though! 

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  • From what you describe it doesn't sound like a seizure. Like PP said you can't wake someone up from a seizure.  My DD has Epilepsy & we either wait for the seizure to end or give her meds to stop it.  It is a good idea to get it on video & mention it to his nuero. Best of luck to you & your LO. He is so cute!
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  • DS2 has had something like this while eating except it's his muscles contracting all over his body like a cold shiver type thing. His neuro said that is it not a seizure but is seizure activity. I'd definitely mention it to the neuro but I agree with the PP that you can't wake them up from a seizure, we couldn't with DS2 when he had his first in September. I hope you can get some answers, it's scary when you don't know what is going on. Good Luck!
  • Seizures vary so much. DS' first seizure ended when we smacked him on the back. He spit up some fluid and started screaming. He had a flurry of seizures in the following 36 hours which were documented on EEG. But even my aunt, who is an RN, thought that first seizure sounded like a "hairball".

    We did not want to believe it, since he was not sleeping afterwards, and the events did not look like seizures we had seen in others.

    Your best bet is to take it to the neuro. If you can get video, that is always a huge help to the docs.

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  • i was just feeding him and it started happening.  i didnt wake him but grabbed the camera which was right by me.  his hand was moving back and forth really fast and his head was twitching a lot. i will definitely be showing this to the neuro tomorrow! thanks ladies.
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  • My DS has seizures everyday. 

    My DD has done what you described a couple of times when she was about 5 months old.  Starts shaking a little bit while drinking her bottle & sleeping.  When I woke her she stopped.  It scared the crap outta me because it was very like DS's seizures, but in the end they were not seizures, just immature nervous system stuff.  She did it about 3-4 times during a one week period, and has never done them since.  My pedi was not concerned about it when I described them. 

    I hope that this is all that it is going on for your LO.  Once your LO has seizures, you become hyper-sensitive to them, and everything can look like a seizure, whether it is or not.  :)

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